I was diagnosed with squamous cell lung cancer in January 2023. I am stage 1B T2 n0M0. I had a right upper lobe lobectomy Feb 2023. I don’t hear much about squamous cell carcinoma on this site or anywhere else. It seems like most people end up with adenocarcinoma. If there’s anyone that has squamous cell like me I would like to hear your experience with this and if any of you have had chemo for squamous cell as I have heard this type of lung cancer very resistant to treatment. After my surgery, they discovered that I have a lot of high-grade dysplasia and some cancer in situ at my bronchial margins. No lymph node involvement I do have something called perineural invasion that at first they wanted to do chemo for and then changed their mind. Now I am being sent to another facility for a consultation for a possible treatment for the cancer, in situ and high-grade dysplasia. They are talking about photodynamic therapy, but they have to do a biopsy first. I also just had my first CT scan post surgery and now have 3 new nodules in my right lower lobe. Too small to biopsy yet. Does anyone have any experience with or insights into all of this extra stuff I am dealing with after surgery and like I said just want to also hear from anyone dealing with squamous cell lung cancer.
squamous cell lung cancer: I was... - The Roy Castle Lu...
squamous cell lung cancer
I was diagnosed with lung cancer in my right lower lobe in July 2020, which was confirmed as squamous cell carcinoma. I had stage 1-2 due to the size of it. I had open surgery for a lobectomy and it was completely removed. I was extremely lucky that I didn’t need any further treatment. I’ve had a few scares and had to have an EBUS because of a raised lymph node in my chest. Fortunately it went down and nothing sinister was found. I am due my 3rd year consultation this week, and each time,I must admit, that I do worry each time! I hope you get the information you are looking for and I wish you lots of luck x
I was diagnosed in March 2023 with stage 4 squamous cell carcinoma, EGFR +My oncologist says this mutation is very rare in squamous cell carcinoma.
I'm on Tagrisso with the intention to consider consolidation after the next scan.
yes I heard having that mutation rare in squamous as well.They haven’t done markers on me yet but they were talking about it. Don’t know if my insurance will cover since I am stage 1B. What is Tagrisso? Did you not have to do chemo or radiation? What does consolidation after next scan mean?
They sent my tissue to biomarkers tests as part of the standard in the UK I think, plus being young (I'm 39) never smoker and otherwise healthy, they felt there must be a "driver" mutation there.Tagrisso (osimertinib) is a biological drug which targets this mutation. I'm only in the beginning of my journey and chemoradiotion will defiantly be considered as well. I don't really know what's the standard practice where you are, but given the are target therapies, this is the main reason it's being done also for adjuvant treatment after surgery
wow very unusual to get squamous cell in non- smoker and rare to have the mutation. Are they positive yours is squamous? You mentioned surgery. Did you have surgery? Didn’t know they did surgery for stage 4. I am not in UK. I’m in US. I was told very little chance I would have this mutation with squamous. Looks like you got lucky there. I hope you do well with any treatments you are able to get. I am trying to take one day at a time but it is very difficult. I am so stressed
I don't know if I'm lucky, but there were are... No, no surgery for me at this stage.This is very tough...I hope you have support around you to go though this
I mainly just have a couple best friends. Even with stage 4 things are so more advanced than they were in the past. Many people are living a long time with stage 4. For me the hardest thing is the unknown and feeling like I don’t have control. Hope you have good support as well. I didn’t think I wanted a man again after mine passed away but I told my friend the other day I wish I could go rent a husband. Lol
Hello Susie215
Our forum is run by a UK charity and the vast majority of our members are based in the UK. Although many of the drugs and treatment regimes are similar each country has its own guidelines, I have added below links to similar sites to this which are based in the U.S.A.
American Lung Association
The Americian Lung Association has its own dedicated forum
inspire.com/groups/american...
Lung cancer Foundation of America
Lungevity
Another forum available on the American Cancer Survivors Network
Hope that you find some helpful information in these websites
Kind Regards
thank you
I was diagnosed with squamous cancer in 2013 and had an upper left lobectomy with no other treatments. I had no recurrences till last year I was diagnosed with squamous cancer in my right lung, that was treated with 20 fractions of radiotherapy and am now back to health and enjoying life.
glad you are doing so well now. I was hoping I would be done after surgery except for frequent CT scans but didn’t turn out that way
I thought the same after my surgery and went 9 years of all clear only for it to return but I stayed positive throughout and I'm sure you can do the same!!
thanks. Hope so
My lung cancer was squamous cell I had surgery to remove half of my left lung. On the TNM Classification it was T2 NO MO. Which i was told meant there was no spread. It was a long time ago and I expect I would have had more treatment today.
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