Gymbuddie

[Gymbuddie]

Hi All. I am new to this website. I am writing to introduce myself. I was diagnosed on 1st March 2022 with primary lung cancer an secondary bone, liver, spinal cord & brain cancer. I am enquiring whether there is anyone in a similar position to me and if so please respond to my post.

[Locket39]

Hello, I am so sorry to hear of your diagnosis! I was diagnosed with stage 4 lung cancer in March 21 when I was 39. I have received lots of amazing treatment and I am currently doing really really well!!

If you want to ask any questions at all please don’t hesitate to reach out.

Xx 💪 stay strong

[Gymbuddie in reply to Locket39]

Thank you for your response. May I ask what treatment you are taking?

[Locket39 in reply to Gymbuddie]

I have had Chemo and immunotherapy. Only 3 rounds though cause it didn’t agree with my kidney. I had stereotactic radio surgery to my brain mets and now I am on targeted therapy. Honestly there is so many new treatments out there!

The most important thing is to stay positive and walk as much as possible!

If you want to know anything, thing like side effects etc, please don’t hesitate to contact me again! Xx

[Gymbuddie in reply to Locket39]

Thank you for your reply. I am currently on Brigatinib since May and so far so good. I am awaiting a further scan in July 22 to see whether it is shrinking the cancer. Fingers crossed.

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Hello Gymbuddie,

Welcome to our forum, I am sorry to hear that you have been diagnosed with lung cancer, I am not sure what type of treatment that you have been offered, our website has a wealth of information on different types of treatment options which are available in the UK. Over the last few years there have been great improvements in lung cancer treatment, there are now more options available than before.

This link will take you directly to our booklet on 'Managing your lung cancer diagnosis'

roycastle.org/app/uploads/2...

It explains the types and staging of lung cancer and potential treatment options.

All our information books can be found on this link, they range from the different treatments to living with lung cancer: roycastle.org/help-and-supp...

If you are looking anything up online, we would advise that you keep to the following websites, that provide accurate and up to date information that is relevant to the UK

roycastle.org/

cancerresearchuk.org/

macmillan.org.uk/

We have a range of support services, from one to one support to online support groups through zoom , if you are interested in any of these you can register through this link: roycastle.org/help-and-supp...

Macmillan support online provide a wealth of information including help with benefits and finances : macmillan.org.uk/cancer-inf...

There are many inspiring accounts from those that have lung cancer and you can find these through this link: roycastle.org/campaigns/lik...

We offer a one off grant of up to £150 for anyone with lung cancer and you can apply for this through this link: roycastle.org/help-and-supp...

If there is anything else you would like to discuss you can email ask the nurse at [e-mail] or call our free phone nurse led helpline number on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600

Kind regards

Roy Castle Support Team

[Nopinkforus]

Hi GymbuddyI'm also new to the site.

I'm 58 and have NSCLC with bone mets.

I've had radiotherapy to both shoulders for bone pain and am starting chemotherapy in a weeks time.

I'm not sure why they're giving me chemo if they can't cure me. I forgot to ask.

😗I'm newly diagnosed so all this is new to me.

[JanetteR57 in reply to Nopinkforus]

Many patients with many conditions are not treated with an intent to cure them - think AIDS, diabetes, asthma, COPD, dementia but to improve quality of life and relieve symptoms. The majority of UK lung cancer patients are detected at more advanced stage but there are many many treatments and combinations of treatments given and many more being approved our health outcomes would be much worse than at present. I found the book 'cancer is a word not a sentence' by Dr Rob Buckman helped me put things into context. good luck with whatever treatments are right for you.

[Gymbuddie]

Thank you. I will look into the book you suggested