Just want to ask for information on how to cope with a lung cancer diagnosis. The nodules where discovered in 2018 after going for a CT scan for chest. I have had MRI scan and PET CT scan. I am waiting for the results of lung cancer CT scan staging. I have three nodules, 2 in the left and one in the right side. One is 3.2cm, the other 12mm and other is 8mm. They are all in the lower lobes. I am really worried and not sure how I will cope with this. Any information is greatly appreciated. Thank you.
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Pipido36
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Hi Pipido, Sorry to hear your news. However I had a pneumonectomy back in 2012 I lost my whole right lung. My point is that is 10 years ago,and I am fine. When I first found out I felt numb, and it took a while to sink in. Over those 10 years there has been a lot of developments in how they treat Cancer. Even the surgery has been improved. I had open surgery, but about 5 years ago I met one of the cancer surgeons who said it would be key hole surgery now. All I will say is if you have a lung cancer nurse specialist keep him/her close. They are so helpful with reassurance , sorting appointments, explaining what happens and a contact not just for you but your family too. Macmillan are also a good source of support. Stay strong, stay positive and trust your consultant. 🙂
Thank you very much for the information. O felt numb and confused as well. As I also have a lot other health issues, I'm scared things wot going my favour. I will try to stay positive and gather more information about it. Thank you again and stay blessed. X
Just sorry I cant be of much more help. Dont forget the Nurses on this forum can also help you. If you click on the section at the top of this page titled about you will get a phone number. xx
Welcome to the forum, and sorry to hear you have lung cancer. It can be quite a rollercoaster of emotions and understandably a frightening time. There is lots of information and support available which is detailed below.
Thankfully, in the past ten years there have been great improvements in lung cancer treatment, and you may cope better than you think. For some people, it is helpful to know as much as they can about lung cancer which can reduce some of the unknown and the fear that it brings.
This link will take you directly to our booklet on 'Managing your lung cancer diagnosis'
It explains the types and staging of lung cancer and potential treatment options.
All our information books can be found on this link, they range from the different treatments to living with lung cancer: roycastle.org/help-and-supp...
We have a range of support services, from one to one support to online support groups through zoom , if you are interested in any of these you can register through this link: roycastle.org/help-and-supp... , alternatively you can email our support coordinator at jessica.crowe@roycastle.org
There may be times that your emotions overwhelm you, they can be intense and then pass, there is some good advice on this from Macmillan support online: macmillan.org.uk/cancer-inf...
There are many inspiring accounts from those that have lung cancer and you can find these through this link: roycastle.org/campaigns/lik...
If you are looking anything up online, we would advise that you keep to the following websites, that provide accurate and up to date information:
We offer a one off grant of up to £150 for anyone with lung cancer and you can apply for this through this link: roycastle.org/patient-grant...
If there is anything else you would like to discuss you can email ask the nurse at lungcancerhelp@roycastle.org or call our free phone nurse led helpline number on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600
It is so hard Pippi I was diagnosed in August last year, I was numb with shock as it was picked up by accident having a scan on my bowel. It's one tumour measuring 3cm diameter roughly in lower left lobe.Things happened really quickly referred to Christie's in Manchester. Started immunotherapy that didn't work for me, so always bare that in mind if one thing isn't for you they will try another.
I've had a bit of a time but doesn't mean you will. Immunotherapy caused diverticulitis so planned chemo on hold. Had first out of 4 then Started with bad back so needed a CT scan as I have osteoporosis too, came back ok but last chemotherapy on hold again.
I think you will have a much smoother ride than me, think mine was just unfortunate. And don't forget if one doesn't work there's plenty of other options. Like Jillygirl says still here after 10 years!
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xx
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