Despair : My husband has small cell... - The Roy Castle Lu...

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Despair

Jacs55 profile image
13 Replies

My husband has small cell lung cancer. We have always known that this fight would be tough but nothing has prepared us for what we have been through.

None of the treatments have worked as each time he has had chemo he got sepsis. We have never been eligible for trails so it's just will alone that has kept him going.

We have just had a another scare and were told that the tumour is so big it's collapsed his lung and is now sitting on his main artety running through his body. We have been told that he is at risk of a catastrophic bleed.

All we wanted was some hope that all these drugs he has had pushed through his body may of done some good but alas no the cancer has the upper hand and we can't do anything but wait .

Life is so cruel my husband has never smoked or been sick a day In his life. He is 51

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Jacs55 profile image
Jacs55
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13 Replies
RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Dear Jac55

So very sorry to hear about your Husband and the difficult time you both must be having.

Sometimes things in life make no sense at all, and am sure that many on this forum would agree. We will be thinking of you and hope you have many special moments with the time that you both have.

There are plenty support services out there for you both, these can be referred to either through the clinical nurse specialist or your GP.

If you wish to discuss anything you can call us on our free nurse led helpline number on 0800 358 7200

Kind regards

The Roy Castle Support Team

alice111 profile image
alice111

So sorry for you and your husband. We are going through something similar at the moment . Sending you love xx

suerao profile image
suerao

Hi Jacs,

We have also been on a situation like urs. Be strong and don't give up hope. Prayers for your husband

Love,

Sue

kennetti profile image
kennetti

So very sorry to read this ..I hope and pray that someone or something comes along to give you hope

miasam profile image
miasam

Im so sorry to here this .cancer is so crawl and unfair .xx

You have my sincere thoughts ,life throws some awful dilemmas ,please perhaps focus on your family and friends at this point and I am sure the doctors have tried to help .I am in a similar situation at the moment they can,t fix my heart either and are unsure what is going on with a ?tumour .So I am focusing upon my family and indeed feeling blessed still able to get about very slowly so not too unwell at the moment,but I know I have no mutations and they cannot treat my heart without damaging it and I also have a brain tumour after curative intent lung cancer treatment 2 yrs ago ,but I never felt cancer left me that it had already spread .Cancer brings hugh amounts of sadness for me and my family ,in my mind I am playing for time eating the best I can eat having people around me who care and exercising with in my limitations .I cannot change my situation but I am doing my best to live with it, it is not easy but if I let it sadness overcome me it passes to those who care about me so I try to look for lighter elements to keep me going .Today I am planting garden bulbs I may never see them but others will and smile perhaps when they see them so that will give me joy.

Your husband sounds very poorly at the moment I hope you can find a way forward through the sadness you are both feeling and the situation you have found yourselves in.No one deserves cancer it is truly horrid and all of us want to be cured of it .My thoughts are with you both .

Jacs55 profile image
Jacs55 in reply to

Thank you and my thoughts and wishes are with you. Cancer dosnt care who you are or what you have planned it just comsumes every thing.

You sound a very positive lady and I take my hat off to you. We use to be like that but it's hard to think past each day at the moment.

Good luck and I hope you are your bulbs turn in to flowers x

Pamann247 profile image
Pamann247

Dear Jacs55

My heart breaks for you dear strong lady. My husband just passed away Monday from SC Lung cancer. He was 51 as well.

It is the meanest cancer i have been told as it is so very very aggressive and so very hard to keep away for long. The treatments he went through were so very strong they ended up hurting his lungs and yes rid him completely of cancer but made his day to day existence exhausting and miserable.

I look back over our last year and see how treatments in the short run buy time but often the time it buys is so filled with weakness and pain it's the harder of the two choices to endure.

I pray God's peace and strength fill you and your husband now and in the days to come. The love, support and patience we give to our husbands are how we serve and sustain them through the trials. It is a painful journey to endure for us all.

My love goes out to you both. I wish you the very best,

Pamela R

Jacs55 profile image
Jacs55 in reply to Pamann247

I am so sorry for your loss. I can feel your pain. As I sit here next to my husband struggling to breathe it makes me grateful for small mercies.

Sclc is a nasty strain and as your aware they don't hold out much hope from the start. None of the trials are aimed at it either. Which I find strange as it's the most aggressive of all. We can live in hope that one day they may find a cure.

I hope you find peace knowing your hubby is no longer in any pain. My thoughts and prayers are with you during this real hard time.

Jackie x

Pamann247 profile image
Pamann247 in reply to Jacs55

Thank you Jackie

You are so right

I watched my husband struggle for two weeks. His lungs were so ruined from the radiation that they couldn't absorb the oxygen pushing into him. His fight was valiant. He will always be the strongest man I've ever known. It was an honor to help him into his forever with Christ our Redeemer. God bless you lady and your dear husband.

Much love

Pamela Richardson

JanetteR57 profile image
JanetteR57

Thinking of you at this difficult, frustrating and sad time. hope you find the strength to get through it….

Hillyblue profile image
Hillyblue

Hi Jacs

Sorry to hear that nothing has worked for you husband.

I have NSCLC. Which in incurable and have recently started a new clinical trial.

You are right about the lack of options in this area and I hope that some progress will be made soon.

I saw this on a website I follow and it is specifically about SCLC. - wondered if you could get some info?

patientpower.info/LifeWithL...

You have to register to watch it. But if you don't want to do that then they usually provide a transcript on the website afterwards which you can read.

Just a thought!

Love Hilary

Avanancy profile image
Avanancy

Hi

Sorry to hear about all set backs for your husband. What is plan now ?

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