I’m not sure where to post this information, but thought that I would start here to try and gain a better understanding of what is happening to me and to seek answers and, hopefully, advice and help, to some troublesome problems.
Nearly six years ago, at the age of 71, I was diagnosed with two cancers, bowel and lung, although they were not related. Following two separate operations, about 50% of my bowel was removed and the surgeon attending me stated that the cancer had been removed and he was satisfied that I did not need chemotherapy or any other treatment for that problem.
However, when my left lung was removed three weeks after the bowel surgery, that particular surgeon, advised that I have adjuvant chemotherapy to ensure that no traces were left in my body.
I undertook a course of 4 separate chemotherapy applications. The chemo used was Vinoralbine and Cisplatin. Unfortunately, after only having taken two of the treatments, I suffered an internal bleed. This cleared fairly quickly and I decided to take the third course of chemotherapy. This again culminated in another massive internal bleed and, as a result, a stoma for seven months.
My hearing has also suffered and I now need hearing aids.
I began a little time after that, to notice that I had difficulty in walking properly, my balance was unsteady and I was unable to stand on tiptoes. My walking has progressively worsened over the ensuing years and eventually I was sent to see a neurologist and this resulted in electrical conduction tests on my legs. I was informed by the neurologist that I was suffering from a sensory and motor axonal polyneuropathy, that there are no specific treatments to reverse the condition, but the expectation is that it should not significantly deteriorate in the future.
It has changed quite significantly, for the worse and I wonder if anyone else has suffered similar restrictions to their mobility. I now have to use a walking stick at all times and my legs feel like they are encased in steel. My life is now quite restricted and I do feel rather depressed about it at times. I do attend a gym twice a week in an effort to strengthen my legs and improve matters, but there is no marked improvement, sadly.
I wonder if there are any professionals looking into motor damage caused by chemotherapy and whether any trials are being carried out on new treatments or drugs for this debilitating problem.
Any comments or help would be greatly appreciated.