Its been a long time since this all started!

[Thereisstillhopejay]

Hi all,

I hope you are all doing well.

I need some help i have been suffering with "FND" for 6 years now.

I thought I had learnt to deal with the seizures a the pain, confusing and all the other little things that make day to day life some times u bearable.

I have worked all the way thought this journey and now I am a bit stuck with what to do becsue at work its becoming a issues. I have had to take a demotion after having time off last year and I took it on the chin and tried again and now after taking pregabalin tillomed im off work. Its only been 2 days I have miss but im sitting here thinking how can I continue working like this. Its destroying me physically and mentally.

I hope for a answer for all of us suffering with this "FND" its horrible.

So my question if any one has been in a similar position with there jobs is what can I do about not being able to work any more.

I love working its my passion but my body dosent and I need to start listen to my body.

[Jofisher]

Hi I had to be medically retired in the end you could try access to work it’s a government free service to see if they can help you its horrible but it is what it is. I have fibromyalgia and fnd and chronic migraines but it’s ok as I’m not working so the pressures off. There are benefits you can have as well you’ll need to look into that. There’s always volunteering it’s so worthwhile.

[Thereisstillhopejay in reply to Jofisher]

Hi thanks for replying. Sorry you had to that im 31 this year but feel like my body is so broken. Has it helped you alot not being at work ?

[Jofisher in reply to Thereisstillhopejay]

At 31 that’s different I was 60 I would do everything in your power to stay at work at your age but also be sensible. I knew my working days were over and I couldn’t do my job so I accepted it but it would have been incredibly hard to accept it at your age. I feel for you

[Thereisstillhopejay in reply to Jofisher]

Thats all I keep telling my self too keep going keep pushing through it. But im really starting to struggle.

[Jofisher in reply to Thereisstillhopejay]

Can I ask what job you do If it’s that much of a struggle then do you have occupational health at work if not speak to your doctor and access to work they’re really good. Just keep fighting it won’t do you any good it will keep coming back and biting you on the bum. Sad but true but seek advice from the professionals and you can then make an informed decision. If you have to go off sick and get medically retired doesn’t mean it’s forever. I was medically retired before the second time and in time I did volunteering then part time work then full time so don’t despair. But seek advice your health is more important than anything

[Thereisstillhopejay in reply to Jofisher]

Sorry for the late reply!! Thank you for your advice. I am a manger at a diy shop.

[Jofisher in reply to Thereisstillhopejay]

I hope you get the help you need there’s also a disability advisor at the job centre I’ve used them before as well. All the best

[210272]

Maybe one of the admins here can help you. I'd go for Matt since he hasn't posted here yet and might welcome the chance to step up. Love your user name

[Thereisstillhopejay in reply to 210272]

Hey. Thank you i thought it was a good idea and could you put me in the right direction with matt please!

[210272 in reply to Thereisstillhopejay]

If you scroll up to where it says 'Contact Us' his profile is there

[cocoferraro]

Hi you,

Have had FND for nearly 10 years,

Am also taking pregabalin,

I am fortunate that I dont have to work although I am near retirement age,

But have got to say that Pregabalin is the best thing I was ever prescribed, it has made me feel much better, but I dont know how I would perform if i had to work??-probably not good!!

I wish I could give you an answer to your question, but the only thing I can say is that I think Pregabalin very much helps FND. Although I think I will never be free of it.

I wish you well and much lovexx

[Grumpyoldmaid99]

Hi, yes I'm totally unfit for work now. It happens, and there seems to be very little support in this area. Pregaballin works well for me in controlling pain. It's different for everyone, and depends on the dosage. There's a fine line between controlling pain and becoming zombiefied, so to speak, as a side effect. Sending you best wishes ; it's hard losing your routine.