Pulse in ear

[whirlygirl16]

Hi to all

Hope you're all doing well

Just a quick question. Has anyone with FND had a pulse on and off in their one ear? It's sort of like a pulsing feeling that only seems to happen when I move my head a certain way and only for about a few seconds, its almost like a little heart beat in my ear drum

[MONIREN]

Yes, it can be distracting, trying to see if heart is out of rhythm. Not sure what it is. Sorry.

[whirlygirl16 in reply to MONIREN]

Thanks for replying. Its weird isn't it? I can always hear my heart beat but this in ear is getting on my nerves. Its a funny contition this FND and makes me feel so ill most days, how are you coping with it?

[MONIREN in reply to whirlygirl16]

I'm very fortunate not to have severe symptoms, just enough for people to stare and make life more difficult. I've forgotten your story. But maybe one day someone will find out why there are so many weird symptoms, probably chemicals in our food. It seems, one medication causes another problem.

[whirlygirl16 in reply to MONIREN]

Your right it could be in the food or medication that causes some symptoms to get worst. I get chonic fagtie and pain also bladder retention and bowel issues, balance problems and if i close my eyes i almost fall over. I also get loads of wired nerve symptoms too. What symptoms do you get?

[MONIREN in reply to whirlygirl16]

I can't walk straight, takes concentration, I have a full body jerk, I have slow speech and losing my fine motor skills, difficult using hands. But I'm still one of the fortunate ones.

[whirlygirl16 in reply to MONIREN]

Oh dear that's awful. We take walking properly for granted until we loss it. I do hope that gets easier for you soon. Im also losing my fine motor skills picking up fruit and small objects is a nightmare and also dropping things all the time is a pain isn't it? But compared to some we are the fortunate ones i agree with you

[Iopyo]

Hi, I’m not sure if it’s the same thing you are experiencing but I often get rhythmic clicking and sometimes fluttering in my left ear, I think it’s due to spasms in my eardrum and ear bones, I also get them in my soft palate, all FND stuff!

[whirlygirl16 in reply to Iopyo]

Thanks for your reply.

I'm not sure if it's the same thing but this FND is so weird isn't it?

[Bailey09]

Hi , yes I do get this problem only sometimes but what I do get as well it's like someone's pulling my earlobe it only last for a few seconds it's strange , stay safe x

[whirlygirl16 in reply to Bailey09]

Thanks for your reply

It's the oddest thing isn't it? I've not had that pulling in my ear lode but that does sound really strange indeed . This FND is so weird.

Stay safe too x

[HeatherKay]

This is NOT FND! It's called pulsatile tinnitus, and despite the tinnitus name, it's NOT regular tinnitus. This is your heartbeat; you should not hear it. Please get this checked out with your GP; make sure to mention the heartbeat, one ear and pulsatile tinnitus. If he doesn't take it seriously, tell him to google it!

[whirlygirl16 in reply to HeatherKay]

Thanks for your reply I've just read about it after seeing your message and it does sound exactly like what I'm getting so yes I will contact my GP about it and see what happens. Were you having this?

[Willothewisp81 in reply to HeatherKay]

Wow, I've had this on and off for years, even before my FND symptoms, I also get random (not often) the feeling my heart does a sudden jump. Both of these are so random and never last long that I've never mentioned it to the GP. I think I will follow it up now though.

[210272]

I think that's a symptom that is fairly commonly reported by people with migraine although it usually doesn't last too long, fortunately. I don't think it's listed as a symptom of conversion disorder.

[whirlygirl16 in reply to 210272]

Thanks for your reply That's interesting to know because I went to my doctors a few years ago with migraine symptoms so I'll get it checked out. Hope you're doing ok?

[210272 in reply to whirlygirl16]

I'm good, thanks. Migraine World Summit coming up soon so you might find some answers there

[whirlygirl16]

I will take a look at that and thanks again for your pointers 🙂

[Charlie1988]

Yes. I do keep randomly getting this. In my left ear. I keep telling the doctors but they either ignore me or look at me like I've just lost the plot completely. I thought it was just me. It has been happening for years. I have just been diagnosed with FND the end of February/beginning of March 2021.

[whirlygirl16 in reply to Charlie1988]

Hi Charlie Thanks for your reply. I get it in my left ear as well and it's really bothersome. Also everything you get now will be put down to FND I've spoken to quite a few people on here and they all say the same. My doctor has proved that when I rang him a few month back with a few new issues and he said people think they have things when they don't 😳 but he basically took no notice and just offered me a vit b 12 blood test which I'd already had not so long ago and it was negative. I felt like he couldn't wait to get me off the telephone and offered no help because I live in Wales UK there's no help on the NHS for FND as it's not funded on our health service but it is in England which is stupid! We should all be the same, are you from the UK?