My husband was just diagnosed with FND. He is in prison which is hard enough for anyone and is constantly the victim of racist attacks. So he has no quiet, no protective environment, can't make his own choices and is always prepared for another external attack.
His FND is totally related to PTSD.
The medical team are not responding to the neurologist and he had a seizure on the stairs a couple of days ago and slid down them, only for a f__khead officer to taunt him and accuse him of faking it.
Before he was in prison I did not leave his side for over 2 years as he was always having seizures. Now that we have a diagnosis (for me at least) much of his behavior and choices now make sense. We are not even given enough time together to process the diagnosis and his care is getting blocked by the health care team. The neurologist sent him links to websites to do research but there are no computers in prisons. This is all such a nightmare.
I have started a complaint process but what I really want to ask is-
Has anyone been in this position?
Are there charities who might provide him therapy in prison?
Does anyone know of an FND specialist who is a criminologist? He pleaded guilty to 3 crimes when he was only guilty of 1, just to avoid the stress of it all. He had 2 seizures in the court and one at the police station.
Has anyone had experience in getting a prison to respect the diagnosis and make adjustments?
We can't try diets, therapies and he can't even contact the neurologist!
I love him so much and am prevented from caring from him whilst knowing he is completely vulnerable to ugly forces on all sides.