Ok or not OK: Is it ever OK to refer to... - Functional Neurol...

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Ok or not OK

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Is it ever OK to refer to conditions like stroke, epilepsy, headache and dementia as 'common and mundane' ?

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210272
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M3rry profile image
M3rry

They might be COMMON, but mundane? Sounds like a comment from someone who hasn't had a migraine (or cluster headache) or cared for someone who had a stroke or dementia (as a carer or family member, not a doctor who gets to walk away after ten minutes).

And epilepsy, if uncontrolled, causes brain damage - very mundane.

210272 profile image
210272 in reply to M3rry

Agreed. It's also disrespectful to the researchers involved with these conditions who have done amazing work and are empowering patients in the process. Two of my friends have had a stroke recently - imagine what they would feel like if they read this?

DNE92 profile image
DNE92ModeratorFND Hope UK

Never. I don't know what goes through peoples' heads when they think like that - and FND is so life changing I wouldn't even wish it upon them for there ignorance.

eviedotty profile image
eviedotty

My neurologist told me a severe bleed on the brain would not be seen by him as a medical emergency having spent a week on a stroke ward and then offered brain surgery to remove the cavernoma that caused the bleed...oh and then they diagnosed

me with FND!!!

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