I am looking for an FND expert to give opinion for court

[Devotedtolife]

Hello all,

I am looking for details of an expert on FND to write an opinion on my husband's FND condition to submit to a tribunal.

The expert will need to visit my husband near Oxford and may be required to come to court (I don't know).

Ideally this expert can speak to both precipitating factors, triggers, therapies, the importance of trust with therapists and the patient/therapist relationship. Also the consequences of not getting therapy.

The problems of being in surroundings where therapy is either not available, or perhaps FND is not yet recognised in particular may know how to assess such information in relation to Sudan.

These are issues I would address but the lawyer, rather than myself, will be in contact directly with the expert.

Does anyone have any suggestions?

Thanking all you brace souls, may you all find healing.

[DNE92 Moderator FND Hope UK]

Have you tried to see if the Law Society of England & Wales maintains a Register of Expert Witnesses? The Law Society of Scotland does - it's on their website. The residency of the expert won't matter as he/she isn't the lawyer. Look for someone that has experience in both preparing medico-legal reports and court appearances. You don't want your expert crumbling under cross-examination. Good luck.

[Devotedtolife in reply to DNE92]

Thanks for your reply. The lawyer will look at that - I was hoping to find someone with particular understanding of FND, otherwise we are limited to whether the lawyer will ask the right questions to reveal how it impacts his life etc and she is legal-aid and has not bothered reading the materials I sent her on FND to understand it and to be prepared to ask the questions.

The FND is an intersectional aspect of the case, her field is the main part, so the legal-aid authorization does not cover this.

So, it's complicated...

[Tid3 in reply to Devotedtolife]

If you could get a pip form or download it online .Answer the questions ,How he gets around daily ,how much he cant do without aid,how far can he walk, etc. Have them at hand to give your lawyer .They will be all the questions about the effects to how fnd affects a person and daily life.

[Kerriekayci]

Hi daughter has FND really bad and I've tried looking for someone also who knows a lot about FND and there seems to be nobody even her neurologists have said there's medication take this there's nothing else we can do for you it's so sad really that nobody in the medical profession has a clue what's what with this condition your kind of just left to get on with it because they don't even no how to deal with it or why it really happened to you.i hope you do find someone that can help you I always think there has to be someone but were is that someone x

[Devotedtolife in reply to Kerriekayci]

I hope your daughter finds healing.

It occurs to me (from the outside) that if we do not radically change how we live (e.g. Move from city to countryside) or from grey country to sunnier lands and give them the opportunity for new lives, with new prospects in the future, new hopes it will be hard to fundamentally get off the path that made them manifest the did-ease in their own bodies.

I know that's not an option for all, but my husband and I are planning to do so, hopefully everything will be simpler without old traumas haunting us by virtue of revisiting and passing places where bad things happened constantly.

Blessings of health and wholeness to all

[M3rry]

Did I remember correctly - there is also the PTSD to take into account?

You might be able to find a PTSD expert as well or easier. That alone being addressed would be a huge weight taken off him, and any reduction in stress should help in controlling/reducing or coping with the FND symptoms.

Just an option should you be unsuccessful in finding a FND specialist who can/will help.

[Devotedtolife in reply to M3rry]

Thanks M3rry. Yes, that is also an option. He had PTSD diagnosed many years ago and this was underlying. After this he was put into an impossible dilemma situation with very severe repercussions on several levels. The FND precipitated at this point. So I am hoping to find someone who can connect the dots that I can see. Now that we have the FND diagnosis a lot of his actions make sense that did not before. On one level he was reclaiming his autonomy and made stupid and nonsensical decisions for himself in "small" areas because he could, because on the grand matters of his life he had been made powerless by deceptions and misrepresentations of others. At the exact same time the seizures started . We thought it was epilepsy now that I know it is FND it all makes sense.

As those factors are still being absurdly (and against his human rights) maintained, there is 0 chance for recovery only further deterioration. He has just started manifesting new symptoms. I have to get him out of all this. So many battles to fight!!!