In the past few weeks a lot of my symptoms have improved greatly, which made me very happy. However one symptom has gotten worse and that is that my joints have been clicking and popping an awful lot more and have been hurting (not considerably, just aching slightly).
Has anyone had this with FND and is functional joint popping even possible?
Hi,
Not clicking and popping. I do have joint problems. I have difficulty absorbing enough vitamin D and this has meant that now that the sun is at too low an angle for the UVB rays to get through (in the UK) I have had to up my dose as my poor old bones are giving me problems. It's these rays that create the vitamin D and also release nitrous oxide that helps with pain control (Learned that from The New Scientist)
Perhaps see your doctor about getting your vitamin D levels checked. Low vitamin D can contribute to FND. My GP just gave me a 3 month course and the refused to check my levels again. Now I take a sublingual spray vitamin D - in higher than the dose on the packet, but that's my choice. I'm working blind as my GP won't check. FND Hope says levels above 500 are best.
I did a silly thing this summer. It was warm and sunny. I was spending more time outdoors and so I thought that I could dispense with it. Oh dear me how wrong I was. All the problems in my neck came back with a vengeance. My knees started playing up again as did my hips. So I know we are all different, but I also know just how much it can help if it works.
Hope this helps. xx
Thank you! I am in the UK too (cloudy Cumbria) and my vit D was low and so I've been taking supplements since I found this but yes my levels haven't been checked since so I have no idea. I've been taking 2 25 microgram tablets a day. I also drink a lot of raw whole milk anyway which i hope helps too.
No worries. I have problems absorbing the tablets so I use a sublingual spray. Seems to work.
It’s called Crepitus. It’s not “functional” at all - it’s either related to wear and tear arthritis or more commonly to inflammatory arthritis and also to connective tissue disorders such as Ehlers Danlos Syndrome/ joint hypermobility disorder.
I have it too and I have several rheumatic diseases as well as arthritis:
en.m.wikipedia.org/wiki/Cre...
I am awaiting an examination regarding EDS. I'm also hoping for a skin biopsy to search for small fibre damage.
Do you know if this can happen in Lyme disease too?
No idea I’m not medically qualified and don’t have Lyme. My cousins both have Lyme and I know it can present as arthritis very similarly to RA although different treatments.
I’ve been under rheumatology now for 8 years and was trained as an RA ambassador plus have attended and been invited to speak at a huge rheumatology Congress as a patient - so I do know about crepitus!
I've had inflammation markers checked twice. Would joint inflammation show on these?
You seem to be an authority round here! Thanks for your help.
Yes inflammation would likely show - it certainly does with me. But it doesn’t always - particularly if you’re immune deficient. It’s very complicated - you’ll just have to read up as I’ve done. EDS isn’t an inflammatory disease it’s a hereditary connective tissue disorder so if it was causing your crepitus then it wouldn’t show in blood. Same with OA/ osteoarthritis. Hope this helps,
I’m not an authority on FND. I was diagnosed with it but hoping to have this overturned/ redacted now. If so I’ll be off!
Yeah, I didn't believe my issues were FND related from the start really.
I'm thinking EDS so far. Hopefully a mild case. If no I think it could be Lyme given my exposure (of course I've had Lyme tests and they were negative!). I only use this FND part because there seem to be a lot of people knowledgeable in what else it could be, father than FND itself! I would say that's ironic, but it's not really when you consider the darker side of an FND diagnosis.
extreme muscle pain and stiffness/ spasms
FND symptom flare ups & sickness
Functional Sensory Symptoms
Has Anyone Decreased Their FND to Almost Nothing?
