Speech loss and FND

[Collie39]

I have lost my speech for over 2 months now. This has been associated with a continuous left sided headache. As I have been diagnosed with possibly FND (however Drs keep changing mind some days they say I have functional dystonia other days they think I have 'real' dystonia- which is a bit annoying.

My real concern is the headache and speech loss came together and are new but Drs have immediately jumped to its a FND symptom. Has any one else experienced these symptoms as new. I have been having other consistent neurological symptoms for over 7 years

[123lisa]

I have very slow slurred speech sometimes nothing comes out !

Everything with me is FND or the new one "it's your age " !!

Since when has been 47 caused burning in ones feet ????😡

[Kosh1689]

I have similar symptoms. I cannot speak when I get for about one hour at least every morning. I do have a lot of headaches as well.

[Tewa]

Yes, I also have speech loss/swallowing difficulties. with Dysphagia, Oral pharyneal with esophageal spasms, tongue biting, food/liqids comng back up in my mouth, abnormal tongue movements. Have had Dysphagia starting in 2010, been tested, documented. MY neuro attributes to FND...seems to dismiss ENT specialists tests, reports and clinical notes. ENT drs all say this is neurological an dI will lose ability to speech and swallow. Also SLP documented this as physiological/neurological. A G-tube has been recommended by ENT and SLP. Neuro says risk of infection and wait. Dystonia has been diagnosed by another neuro. Primary neuro says my dystonia cannot be treated by the standard drugs. Why, I ask? NO response. Was recently hospitalized(third time for low oxygen levels and breathing issues) this time was intubated as I was close to stopping breathing per testing, oxygen and co2 levels and breathing test. Am being evaluated again for Myasthenia Gravis. Was diagnosed in 2014 with MG. Neuro here per SFEMG said no MG, instead ME.. I an an ACC - assistive agumentative deice to speak for me. Neuro wrote an order for this. ME is Myalgic Encephalomyletis, a systemic, neuro-immune disorder. No cure, no treatments. I also have a positive Epstein-Barr Test and a test positive for genetic autoimmune disorders.

I know how frustrating and at times, scary, this all is. Sending support

[Tewa]

When this started in 2010, I would have periods of swallowing difficulties and a gravelly voice when in a flare -up. I also had other neurological symptoms. Was then diagnosed with MS. Neuro changed his mind 3 months later and said I don't know. After that, i started getting the all in your head attitude.