New: Hi, I'm Melinda. I'm diagnosed... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,582 members2,909 posts

New

3 Replies

Hi, I'm Melinda. I'm diagnosed with Sjogren's Syndrome, functional movement disorder, and functional dysphonia. For me, the worst is the vocal cord disorder, functional dysphonia.

3 Replies

Hi, thanks. I have a need to know, i'm heard. That's why I posted my vocal cord dysfunction, functional dysphonia, is the worst of all my diagnoses. People, in particular, some of my fellow residents (I live in an assisted living home) don't hear me, don't acknowledge me most of the time, that I am talking and I can and do talk. I am not whispering which I think some of the residents, don't believe and won't change that belief.

I am glad I found this site.

Blue80 profile image
Blue80 in reply to

Hi, sorry to hear of you're troubles. The most annoying for me is unpredictable going paralysed.. other then that I can't pin point.

in reply to Blue80

It's the unpredictability of the involuntary movements that almost prevent me from going out, keeping dates with friends. I've cancelled many dinners and other celebrations because of fatigue (Sjogren's Syndrome) and also because of my fear that I would have an episode.

You may also like...

Stimulated is this right? (New & Hey)

Hey, Think I am getting closer to diagnoses, after 4 odd years, the two suggested...

New Member's Thoughts & Concerns

Hi, I have recently been diagnosed with FND and I am more confused now than I was before the...

New to the forum

Hi all, I'm new to the site today, was diagnosed with FND symptoms and NEAD last December, also have

New member

Hi everyone , I'm New to the site and would like to share my experiences of fnd.

New and uncertain.

I've been on the MSSocietyforum (UK) for a while. I'm still in Limboland.