PIP application and Mental Disorder -... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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PIP application and Mental Disorder - why bother?

DNE92 profile image
DNE92ModeratorFND Hope UK
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Hi

I was one of the lucky ones to get PIP the first time around. In addition to PIP I also have quite a rare mental disorder - wahoo yet another rare one. Lucky me. Well to cut things short my shrink ignored 2 polite emails to him asking if he had been asked to send a report to the DWP and could I have a copy. When I had my last meeting with him and brought up the PIP questions his reply was that he was so inundated with such applications that he just ignores them! Hey man what about all those bits of annoying paper - each and every one of them has a person behind them despreating (sorry had a really bad time with seizures recently and my spelling is still to come back properly) needing help.

Changing the subject (slightly) I went off to have my hand and hip x-rayed as they are painful. My thumb I could just cut off. Isn't being able to touch your thumb and index finger together (forget the posh/correct term for that - oh is it interpose) what puts us at the top of the food chain. Well seems I'm now part of the chimp family. Don't they say that if you give 100 chimps typewriters they will eventually produce the works of Shakespear. Well I'm off now with my chimp mates to get started; think we'll start with King Lear as I like that one.

On a little more serious note is developing these aches a natural progression in FND in that more symptoms can develop? Anyone else have this happen to them? I went down for an x-ray and it ruled out arthritis (good). But 6 seizures later I sat there in my cut up Bruce Springsteen T-shirt. What sacrilege!!!.

Anyhow off to start on King Lear.

Best to everyone.

Lou

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DMA1664 profile image
DMA1664

Hi Lou, I too have submitted a PIP application and am currently awaiting on the result of my assessment. Like you I suffer with all sorts of aches and pains that leave me walking like an old man or as my Mrs puts it John Wayne having just got of his horse. I also suffer with twitches, tremors, cramps, brain fog, speech and word finding difficulty, body attacks/seizures and more. I'm start CBT tomorrow but haven't been offered physio for limb weakness or myoclonic jerks while walking. You're not on your own.

DMA1664 profile image
DMA1664

I applied, had the assessment and have been knocked back totally scoring zero on all aspects. This was despite the Citizens Advice helping fill in the forms and us showing video evidence of my walking difficulties, attacks and tremors etc etc. Me and the wife can't believe it. My symptoms are daily and living a fully functional life is hard to say the least. Their response contains wording that clearly reads 'there's nothing wrong get on with it'. The neurologist said to give up driving and surrender my licence because of the seizures, cramps and tremors but the assessors says in his opinion I can drive because I show reasonable cognitive function. That in itself is rubbish because my Mrs has had to take on all bills etc because I can't get simple things through my head and it's took 20minutes to type this. Also, because I walked from the waiting room to the consultation room (with an elbow crutch I use daily) which he said was 20 metres (which it wasn't) it is his opinion I can walk over 200metres. How is that calculated? I will appeal against the lies after my next neurology visit in October. They've absolutely no understanding of the problems we have to face with this disorder and an insult to a bloke who's always worked hard and served this country from being young. I'm pleased for those who have been granted their PIP payments, but will advocate not putting too much hope on being awarded anything. Does anyone know if there's any truth in the Daily Mail expose of assessors getting bonuses for those they cap or knock back?

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