EEG help ... : I had a videotelematry... - Functional Neurol...

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EEG help ...

Cleoham87 profile image
9 Replies

I had a videotelematry and have received this letter ( cropped my address etc). I'm trying to decipher what this means ... has anyone else had experience in having results like this or can shed light on it for me ? Thank you in advance.

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Cleoham87 profile image
Cleoham87
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9 Replies
Dreamgnome profile image
Dreamgnome

It means they didn't see any signs of epilepsy in the EEG. Generally speaking they will probably say it is Psychogenic NonEpileptic Seizures (PNES) in the US or NonEpileptic Attack Disorder (NEAD) in the U.K. You can Google the terms for information on them.

Cleoham87 profile image
Cleoham87 in reply to Dreamgnome

Thank you once again x

ukmsmi4 profile image
ukmsmi4

Hi Cleoham87

I've not had experience of this phrase myself, but on googling it I would tend to agree with Dreamgnome that it sounds like they are saying the EEG didn't show any signs of epilepsy. I did have an EEG which they simply said showed I didn't have epilepsy but they didn't explain further to me.

I found this site which may help explain what signs they look for to check for epilepsy epilepsysociety.org.uk/clos...

And this one that explains a bit about the NEAD that Dreamgnome mentioned nonepilepticattackdisorder....

Try not to worry about it, though I know that's easier said than done. Your letter does say they will discuss the results with you when they next see you, but meantime the links above may help shed a little light on it.

Gentle hugs, Margaret. xxx

Cleoham87 profile image
Cleoham87 in reply to ukmsmi4

Thank you x

Cleoham87 profile image
Cleoham87 in reply to ukmsmi4

Thank you x

cgarff profile image
cgarff

I would site with what has been said as well. It sounds like they saw a little something, but nothing to alarm them at this time. I have had this test as well, and mine came back indicating I have both non epileptic and epileptic seizures.

So much fun either way. Don't stress, And brush up on your knowledge for your appt. It can help make sense of things. Best of luck

Cleoham87 profile image
Cleoham87 in reply to cgarff

Thank you x

EnglishIslander profile image
EnglishIslanderFND HopeVolunteer

I would say to discuss this when you next see the consultant as I would read this as your having NO attacks during the telemetry. Did you in fact have a Seizure during this period? If not then it doesn't help diagnose your problem and further testing would be necessary.

Cleoham87 profile image
Cleoham87 in reply to EnglishIslander

No I did not have an attack during this period x

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