speech is too much

[Ava78]

fibro and FND is too much for me, after an episode my muscle hurt so bad for hours what is happen to us? Has anyone ever ask you what language you speak?

Ava 78

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I was diagnosed with fibro the same time as the FND i just thought i was getting old, i think its the worst pain..sometimes my body burns and i cant even put clothes on...at least we can share each others pain..❤

[cgarff]

Hi Ava78,

I haven't been asked that, but I have had people back away from me because I sound like I have a horrible cold, They don't want to catch what I have. After Almost 9 years of this, its about time this cold got better.. ha ha.. Seriously people.

I think my biggest problem with the speech issues is having to repeat myself a million times, especially when the words don't come out right, I can't articulate, or can't get the words out at all, but what language do you speak? That is a new one that is for sure!

Good luck.

Cheryl

[VivienneWaterworth]

If your muscles are totally exhausted by any kind of exertion/movement, then it sounds like you have a very serious magnesium deficiency of some kind. Magnesium is food for the muscles, and not having enough can cause that exhaustion plus all kinds of damage when you have seizures or spasms.

My doctor kept insisting I take more, with every visit, until he had me up around 6-8 big tablets a day. Now I can drop down to 3 most days, but any hint of a seizure and I'm back up into the 6-8 a day again.

The other thing we encourage newbies to do is to start Vitamin B12 - injections from your doctor, or tablets. Many of us have semi-permanent damage from a B12 deficiency, even when our test results show we are in the lower half of the normal range. (Surprise, surprise, I reckon they should increase the normal range so those of us who are deficient but with normal levels no longer show as normal lol!) One lady has had an injection every 2nd day for several months, and her seizures reduced significantly, from a high of 30-40 a day! A lot of her balance issues have also gone away.

Have you checked out neurosymptoms.org and fnbdhope.org ? These two websites have a lot of info about FND.

Speech problems are common. You may need to see a Speech Therapist who will work with you to help her understand your speech issues.

Working together with therapists, helping them to understand your condition, is essential. If they think they know it all, and they try to give you standard therapy of any kind, the chances of it working for FND patients drops from 80% down to 20%. Kind of critical that they understand your specific needs.