How many FND suffers are there in the... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,817 members • 3,083 posts

How many FND suffers are there in the uk

5996dawn profile image
5996dawn
•3 Replies

Hello everyone,

I was diagnosed with FND last week. Mine was a quick diagnoses because I catalogued my symptoms day by day and shared them with the neologist. Which I paid for😟

I am sad that this disorder is rare. I would like to know how many FND suffers are there in the U.K.?

Written by
5996dawn profile image
5996dawn
To view profiles and participate in discussions please or .
3 Replies
•
DNE92 profile image
DNE92ModeratorFND Hope UK

Hi

It is said that in a city the size of Birmingham (1 million) there would be 60 - 90 people. Rare indeed. And I'm sad that you've got the disorder - it is unpleasant as I'm sure from your diary. But welcome here. It helps to get tips, to talk to other FNDers, to get a better insight to how the health system deals with such a rare disorder. Sad to say that many of us (including me) have faced stigma and accusations of faking by the medical profession.

Sorry don't mean to put you off this site - we all have a gallows sense of humour and having a good laugh is so fun.

Nice to meet you.

Cheers

Lou

5996dawn profile image
5996dawn in reply to DNE92

Hi, I always take control of my own health and I don't care what doctors think??? You must remember that certain diseases was once rare, but because of funding and research medical professionals have recognised them , like MS and Parkinson.

It sad that there is no medication given re symptoms....I plan to look at my diet more closely, I believe that as suffers that there is a common denominator.....that makes us seceptable to this disorder. I am not an anxious nor stressed out person so when I went to my Gp I was calm and collected my symptoms, because I know that when you present as anxious about your health, it gives them the excuse of saying you are stress and an

5996dawn profile image
5996dawn

Sorry I sent this before I finished it

Not what you're looking for?

You may also like...

FND in the UK

Just a brief thought I’ve always had... why are there so many people in the UK for this disorder?...

Dis belief in FND

This has become very depressing to read over and over, if you do not believe in FND, if you do not...

why are dr’s so quick to say you have fnd

my first post in the year 2022 I got took to hospital with stroke like symptoms, they did the test...

Specialist in FND

Having been given a "suspected diagnosis of FND" and being told by the neurologist in Middlesbrough...

How do you get referred to the best FND specialist in the country If you are out of the area? I am willing to travel!

I was diagnosed with FND March this year but my neurologist has retired and not really set a proper...