How many FND suffers are there in the uk

[5996dawn]

Hello everyone,

I was diagnosed with FND last week. Mine was a quick diagnoses because I catalogued my symptoms day by day and shared them with the neologist. Which I paid for😟

I am sad that this disorder is rare. I would like to know how many FND suffers are there in the U.K.?

[DNE92 Moderator FND Hope UK]

Hi

It is said that in a city the size of Birmingham (1 million) there would be 60 - 90 people. Rare indeed. And I'm sad that you've got the disorder - it is unpleasant as I'm sure from your diary. But welcome here. It helps to get tips, to talk to other FNDers, to get a better insight to how the health system deals with such a rare disorder. Sad to say that many of us (including me) have faced stigma and accusations of faking by the medical profession.

Sorry don't mean to put you off this site - we all have a gallows sense of humour and having a good laugh is so fun.

Nice to meet you.

Cheers

Lou

[5996dawn in reply to DNE92]

Hi, I always take control of my own health and I don't care what doctors think??? You must remember that certain diseases was once rare, but because of funding and research medical professionals have recognised them , like MS and Parkinson.

It sad that there is no medication given re symptoms....I plan to look at my diet more closely, I believe that as suffers that there is a common denominator.....that makes us seceptable to this disorder. I am not an anxious nor stressed out person so when I went to my Gp I was calm and collected my symptoms, because I know that when you present as anxious about your health, it gives them the excuse of saying you are stress and an

[5996dawn]

Sorry I sent this before I finished it