I was in a minor car accident six months ago, and since then have been suffering from dizziness, loss of balance, difficulty with concentration (it's quite hard to focus when you feel like you're spinning constantly) and recurring bouts of neck pain. I've been off work for months with no idea when I'll be able to return, and recently gave in and bought a walking stick to keep myself from falling over in public.
Tons of physiotherapy has yielded no results except for a reduction in neck pain and stiffness (which always seems to come back eventually...), MRIs of my brain and neck showed nothing, inner ear problems have been ruled out, no one I've spoken to has been able to tell me why this is happening, except for the vague suggestion that it has something to do with my neck muscles being messed up. My GP has finally agreed to send me to a neurologist--the appointment is later this month--and after a lot of reading, I have a feeling the neurologist will at least suggest FND as a possible cause. It's the only condition I've found that matches what I'm going through, and I've read that it can be triggered by accidents.
Now, my questions:
1) What is the actual consensus among neurologists and psychologists about the role of psychology in this condition? Or to put it another way, do medical professionals believe this is "all in the head"? Sites like FND Hope and Neurosymptoms say pretty confidently that no, sufferers are not in control of their symptoms or making them up, whereas academic papers I've read seem to suggest the opposite--that health professionals believe people with FND are just imagining their symptoms, or even that they're subconsciously faking them without realizing it!
I'm not really thrilled about the idea of a consultant telling me I'm somehow making myself feel dizzy, particularly as I don't understand how anyone could possibly know that without reading my mind. Which brings me to my second question...
2) Everyone seems to agree that there is (or at least can be) some link between FND symptoms and mental illness, but how was this determined? I'm not a neurologist or a psychologist but I do have a scientific background, and a lot of the ideas around FND and psychology, particularly those rooted in Freud's "conversion disorder", seem very flimsy. I understand that many aspects of how the brain and the mind function are still poorly understood, but some of the confident statements and diagnoses that people on this board alone have been handed seem (again, in my admittedly uninformed opinion) to not be supported by a lot of evidence.
I know these are fairly broad questions that most people (myself included) probably don't have the expertise to answer, but I'm curious what your take on it is anyway.
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Chiralspiral
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Amelia, thanks for making me smile. you always find the right words.
ā¢ in reply to
Amallia.
Feisty today. Remember, humanity dreams stuff up so people can have a job. I think I feel like you today. Now where is that electrical outlet for the high voltage wires...
Dan / Seattle
ā¢ in reply to
If I meet a psychologist or psychiatrist who quotes or believes in Freud i dismiss them immediately.
Would this guy be allowed to say what he did today?
And just because you are educated or have titles doesn't mean anything. You can still be an idiot. Haven't we all met at least one?š³
ā¢ in reply to
Amallia.
That's the spirit!
I seen so many idiots in medicine, they have assimilated me into being one as well.
Thank God you came along with deprogramming logic to save me.
I think I would have become a TV spokesperson for big pharma otherwise.
Be good today and do some more truth telling.
Dan / Seattle
ā¢ in reply to
Dan you have no idea how you guys changed my thinking.
Now I'm on a hunt for all.
For those who don't know me I'm a nurse (paeds) so don't pretend to be an expert in adult medicine but i was a great nurse and I never say things like that.
Also I was a security manager and involved in many dangerous situations so it's don't mess with me or I will get less polite.
This is not for the people on here by the way.
I'm about to possibly be diagnosed with a different disease. Iv already worked it out but get the feeling they might leave FND in my notes because they like that title.
But if I'm 'cleared' of FND il still be here reading, responding and searching for answers for all.
In fact my actual diagnosis and malatete you will understand this is worse than having the FND label, shorter life expectancy, organ failure, 44 times more likely to develop cancer. Do I care. No I don't.
Il still keep fighting for all my friends here. I'm not a giver upper and Iv spent 25 years researching in my work and I will continue to do so
š¤š¤š¤š¤š¤ā¤ļø
ā¢ in reply to
Amallia.
You are such a class act.
You keep raising the bar on my definition of integrity and respect for life.
I stay alive because medicine has also tagged my 30 year old daughter with this by saying she has exactly what her dad has and by God they will tear me apart cell by cell until the truth is known.
Ask any doctor about genetic linkage evidence and they suddenly shut up.
Science has to underpin a diagnosis or medicine has done nothing.
Amallia has demonstrated that to perfection and will overcome her real disease and live a long happy healthy life.
Why?
Because she has family in Seattle who loves her and cares
Reason enough.
Dan / Seattle
ā¢ in reply to
Thanks for your lovely words Dan, as always.
What I don't get is where are those doctors who want to make an impact?
ā¢ in reply to
Amallia.
The question of the century.
Why don't they come out and play?
You ask the relevant question.
Dan
ā¢ in reply to
It can't be worldwide so it can't be financial e.g.
Is there a fear amongstthe profession to go against the grain.
So in my personal experience there is not an easy answer to your questions... A lot depends on who your speaking to and what the issues are. personally I would agree with FND.org that it is no longer an automatic psychological cause. Each case presents differently and like many diseases theres no clear etiology. no 2 cases are alike.
I have a working diagnosis of a functional gait disturbance and have had many conversations with the medical community. let me see if any of these conversations help. Recently I had this very same conversation with 1 of my 3 neurologists as they try to explain it.... who all 3 are in 100% agreement that my FND is one because of my systemic illness. each described it differently, yet the same. # 1 Dr B, said that I had an illness that caused damage to my brain, which he referred to the basil ganglia. Anyway. he said that my brain was injured and hence has heeled. but my signal is still malfunctioning, so my body is not getting the correct signal. said I needed physical therapy and gait retraining to help my legs know how to walk again. He did not label it FND at the time but Im fairy sure he was thinking it. when he spoke to my pulmonary it landed me on 2 months of ____ as I was forced to take zoloft. which did not work and only made me sick. My GI doctors were both upset ...Neuro # 2 Dr G, is the motor movement doctor who gave m the diagnosis of functional gait disorder and said it was separate from the other issues I have going on. He explained it slightly different. He said that like a computer software ( aka my brain) got a virus ( aka my systemic illness) and the software bug ( aka illness) impacted the computer software signal... The hardwires in the computer ( aka nerves) are fine but the software was damaged in the computer. so you need to fix the software and not the nerves. those are fine...which is why the tests come back fine. the problem is not the hardwire, but the signal being sent like a computer virus makes the computer malfunction the illness is causing my brain to malfunction. He also sent me back to PT for gait retraining. sent and spoke with my PT to help her understand what I needed specifically.... Neuro #3 Dr O, agreed with everyone. agreed that I need PT and because the nerves are not damaged a recovery s possible. its all good. Explained it being similar to a patient having a stroke. you have to reset and re train the pathways from the brain to the legs to make them work more functionally.
so like i said, I can tell you that within the world of neurology the neurologists who are willing to learn and read the new philosophy- FND and conversion disorder are interchangeable but in the modern times the attachment to a physiological cause is no longer the case. I can also tell you with the rest of the medical community that is NOT the case. For example my rheumatologist discussed his concerns he has on my muscle weakness. He said and I will quote " you know what they are saying with functional gait? you know they think it is all in your head right? you understand that right?" in which I remained calm and stated that I am not 100% in agreement, I kind of get where they are going. but I do know that I need PT so that is all I have to believe in at this time. I also added that Dr B said even if it was MS it still would be in my head because that is where the brain is located. he responded let me know when you want a referral to another neurologist. I told him that I am hoping PT will work and want to give that a try first. My endocrinologists disagreed and said that he hopes that they are still investigating since FND is a finding and not a diagnosis. My GI wrote in her office note..." she is being evaluated by neurology without a clear diagnosis".... Let me point out that the endo & GI are both in the same hospital. lol
I have had as many here have also had...experienced the lack of understanding. more than likely based because of the inconsistencies in the medical world and need for evidence based. sense the reason we are now on the evidence organic vs functional paths. it is now our world...our rollercoaster.
In one of my more recent encounters I was placed in a situation that just having conversion disorder written in a medical code got me called in to the office at work and I had to basically talk my way out of being fired. I have sense returned back to work, really before I'm ready because of wanting to get out of the lime light and be able to fly under the radar at work. not right but it is what it is. being part time on disability made it harder on me because the neurologist labeled it with the medical code of conversion disorder. he removed it from the one at work, which is how I "saved " my job. I discussed this with him during my appointment and I explained that he might not have the thought of a psychological cause, but others are quick to associate that to the word conversion disorder. he agreed that can happen. and then when I saw the same billing code used I lost it. I contacted him and told him that best get off my medical records. Theres no need. there are other billing codes that have been used before and i did not want that in my medical records. I will share or email since i think it might help with your questions.
I restated some of the conversation we had...." Between work, family and medical professionals I have had to explain it so many times this month I lost count & I really hate that I have been placed in situations that I have to but it is what it is... As you know, the word "conversion disorder" has a stigma and it makes it more difficult. I can tell you many medical professionals are NOT on the same page as you. They see that and their opinion and judgement comes right out. For example, I have heard "its a bit much" Its all in your head" and "you know they think its all in your head?" to name a few....So yes that term is upsetting. And I am the one left to deal with others who have already placed judgment. Right or wrong it happens. So if another billing term fits and is allowed, then I see no reason to use a code/ word that is still associated to a psychologic disorder. and reminded him of the other billing codes he an others have used....i.e. Functional gait abnormality, functional gait disorder, functional movement disorder were codes that were used, which are more specific to my situation. and asked why would you bill it as a conversion disorder? told him how can i trust him if he says one thing and yet does another.
this is his response...." sincerely hope you do not construct this is a break of trust. I have changed the code per your request, and it should no longer appear on your records. I would point out that under the current modern understanding of this disorder, the terms functional disorder and conversion are indeed interchangeable. Yet, the assumption that there is always a psychological trigger is no longer the case. Or that the condition is a purely psychiatric diagnosis. I believe we have discussed this.I am sorry you are having to deal with the widespread lack of education (or miseducation) that many physicians have about this. I have changed the code to gait disorder and I agree that it is my duty to do whatever I can do to decrease the the burden you are already carrying. As such, I apologize for the undue distress. I am also willing to provide recent scientific articles for those that are uneducated about the topic and have misperceptions about your condition."
so as you can see..the neurologists if you have a good one, all agree its more than a psychological cause. BUT others do not. hope my share helps. not an easy path we are all on. It is but a Rollercoaster with many twists and turns and watch out for the bumps. I want off as many here do and by NO MEANS did we do this to ourselves. I do not and will never believe that it is a psychological cause. I think each case should be handled independently of another.
positive thoughts we can find some calm tracks. ones with beautiful scenery. Patti
And that MS is now all in the head, so is blindness, deafness and stroke, bet those people are all faking too they are somehow managing to beat the technology that proves their illness.
Maybe it's not just a psychological illness anymore, maybe it's psychic too. Maybe people can fake doctors and sophisticated equipment into believing positive results from various illnesses š¬š¬š¬
ā¢ in reply to
Amallia.
You are on a roll today...
Dan / Seattle
ā¢ in reply to
My Buddhism flew out the window this week. Il go find it tomorrow š
ā¢ in reply to
Amallia.
I see the pure lands today and their is no FND in sight.
I think that might be the funniest most untrue explanationfor umbilical pain in children I have ever heard. If you google somewhereumbilical pain there are about 10 different causes from appendicitisto pancreatitis, stomach ulcers or inflammation, gallbladder,liver etc. I would hazard a guess me only being a paeds nurse and used to diagnosing kids that if all the organs are ruled out then anxiety may be a cause which would affect the stomach but do they need antidepressants or something to calm the stomach lining and if the scurry is bad, I'm not discountingthis a therapist if needed.
I've a friend who had that thrown at her a few years ago when they were just starting to recognize it as a thing. Frankly, I believe she has the "pain disorder" version of the overly huge FND basket.
I feel old now. I trained 17 years ago but always kept up to date with practicesin all areas medical and surgical but I feel something's have gone from real medicineto the we will make it up as we go along because they won't know any better. Like me being told I have 2 nerves in one finger and I asked the consultant to please not get his registrars to lie to me again as I know it's one nerve š¬
This finger really wants to come off. 6 surgeries later and I spent 9 hours flying from Abu Dhabi to Edinburgh then more to get two docs to pull ring off.
Also still black from bruising falling at Denpasar airport.
Might have to become cotton woman for a while.
Make doesn't suit superhero objectives so will have to rethink name and outfit while thinking of other finger to point š
I still don't know how you managed that trip. Talk about bravery! I'd have folded before I even finished making the plane reservations. You really are a superhero!!!
I'm sufferingthis week. Couldn't form sentences first few days. Cleaning lady came first visit and she cleaned around me. I just moved rooms with a blanket. Today I felt like my thyroid was under I couldn't wake up.
Need a week to just shut phones, emails, curtains, life then I might come back.
Oh my! I do recommend a strong dose of hermitizing. Brings everything back into perspective.
ā¢ in reply to
Middle one sounds great š to me. š¤ššš
ā¢ in reply to
Guys...
I'mā in on this one. Thanks. Feeling better ..
Dan
ā¢ in reply to
Hi nurmi, dan and Amallia,before seeing professor Edwards one of the nuerologist said l had migraines and was why I'm like I am. The fact I've never had a migraine in my life was irrelevant to him. My friend suffered them for years so I certainly know I've never had one. Soooo many labels from sooo many professionals. It gets tiring. Love ā¤ļø to you all. Xx
ā¢ in reply to
That's one of the laziest, worst excuses iv ever heard.
I was in the coolest job I loved then spent 3 years getting my masters just to do the same job but hopefully go higher up so yeh I psychologically decided to end my life and have FND. I'm itching like crazy to go back to work now. I have many days of tiredness etc but on that one day where I get clarity I feel like I might go mad as I know where I want to be and it drives me crazy watching dvds when I could be doing something useful. And I used to love my dvds, I did such physically and mentally draining jobs when I came home quietness and a clean house and my dvds and cats were heaven.
As we share our symptoms, diagnoses, treatments and horrible encounters with medical professionals - it is VERY clear to me that too much is being dumped into a single diagnosis.
Dan and I suffer occasionally from what I refer to now as gorilla walk, but he has dangerously low blood pressure and I have uncomfortably high BP. How can that be if we have exactly the same condition that's all in our heads? The answer is obvious. We have more than one thing wrong with us. Hello?
Stress induced, "psychogenic" manifestations are definitely part - *possibly* the most significant part - of the mix. But the only part? NOOOOOO!!!! Moreover, there are lots of very different ways to treat the "psychogenic" issues. Because, hello?!, there are many and very different ways to develop the "psychogenic" issues. And as confusing as that sounds, that's a good thing. It means we don't have to rely on one single route out of this. And if we have a doc that insists on one route, drop him. He's not a real doc. He's only pretending to be one.
I love it. Why not try to treat individually what you can as has been medically proven we call it 'evidence based practice' here and in oz then see what's left.
Maybe and I know this sounds out of this world crazy, if you could treat some of the symptoms there might be less stress on the body and other symptoms might lessen due to being able to relax a bit as there are not all these different disorders fighting in the queue to come at you next. Maybe there will be peace šā¤ļøš¤
Yeh I watched my uncle go from a fit contractor to someone who couldn't interact, life of next 25 years became about reading books, lost all his friends and his life, never left the house then died last year. I'm sure that was all in his head.
ā¢ in reply to
Amallia.
Giving me flashbacks....
Dan
ā¢ in reply to
Oh sorry.
But his family gave up on him. You have a family who loves you. And us x
He was in Australia. I would take him books and watch the news and he could say who was a 'bloody idiot' when politicians were talking and was up on all intelligent discussion. It's sad his family gave up. He was a lovely man and I didn't have many of them in my family š
ā¢ in reply to
Amallia.
No. They were good flashbacks. I have fought hard through these years and am like your uncle.
I did good to get here. Now you and this community keep me going.
Dan / Seattle
ā¢ in reply to
He did well all by himself. Even when my dad came out a few years ago and we have no relationship now he was shocked by how his sister - his wife and their kids just ignored him as my parents all lived in Australia at the same time in 70's and had great memories of a bit too much fun I think.
I found the same when I had my car accident. All these false people on Facebook crying that their friend was in hospital (I don't use Facebook, I was told this) and me comforting crying friends that il be ok then 6 months later where are those friends.
People like short term drama, and illness but if it's something long term that's when you find your real friends š¤
ā¢ in reply to
Amallia.
It is the Long haul that matters. You so right.
Dan
Chiralspiral.
I love my community friends....
I am multi decade sufferer. I have great admiration and respect for what others say here regarding their conditions.
This is an unknown disease entity. As such, medicine has only speculated about it's origins. What is known is that it affects the nervous system. To me, that makes it an organic disease.
I am a disciple of Amallia's thinking and a believer in Patti's rationale for her own complex condition.
Amallia gives solid evidence of involvement of autoimmunity and localization of damage to the brainstem area.
Patti gives solid evidence of indisputable multi-organ systemic disease involvement.
I have no idea how doctors are able to parse this evidence and transform it into being of psychological origins.
I find zero evidence in science to support that the disease originates in the mind.
In me, it ultimately affects the mind as the body and brain adjust to being an organism that is damaged and now must function abnormally. I am abnormal.
But there is no basis for psychological origins of the disease itself.
All disease causes humans to adjust to adverse conditions. FND is no different.
Do not doubt yourself. Doctors are operating in a circular realm. They chase their own tail.
Keep searching.... Our mantra.
And yes, I am very unwell from this.
Dan / Seattle
ā¢ in reply to
Hi Dan, the 3 psychiatrists I had too see from my first dr. The last one was a senior as my dr wouldn't accept her juniors reporting. She was so angry that my dr ignored her workers. She wrote saying unless he examined all organic something (I can't remember) how could he keep saying it was psychological. My dr was furious at this and angrily said, I suppose now I'll have to send you to a nuerologist. I left him that day and found another dr.
ā¢ in reply to
Lisa-anne
Sometimes defiance is all we have left.
Organic hides itself so well Lisa-anne. You understand all of this magnificently in so many cases. Your instincts thrive even under the worst of conditions.
The docs have tried so hard to find in me that this is psychological. Yet they come up empty handed time after time. No proof. No science. They have no dignity left in my eyes.
I may not survive what they will have to do to me to find this cause. No matter. We wait for that day with strength. So I document every misdiagnosis and tell them it will be found the other way and when that happens, my daughter will be properly treated by science and those that skulk in the "alley of the ignorant off the main street of knowledge" (paraphrased from a TV show last night) will be held to the light for scrutiny of their actions and misdeeds.
More love and admiration. Your kindness reaches my being.
Dan / Seattle
ā¢ in reply to
As Dan has not come up with a song in a while I'm going with 'fight the power'.
You are both an inspiration to me for continuing to fight as unwell as you both are.
Dan I love that tv comment.
I hope in years to come when this is diagnosed with a proper term all those ignorants will hold their heads in shame.
ā¢ in reply to
Amallia.
" I'm Walking on Sunshine"
Katrina and the Waves 1983
Album: Walking on Sunshine
Where the heck am I.
Dan / Simpatico
ā¢ in reply to
I think every doc has the right if they think it is something serious enough or difficult enough to refer you to the consultant so for them to get insulted by this makes no sense.
I sometimes go to see my gp and they have a student and my gp usually asks them to leave because this is complex but I feel bad as I used to always say yes to having a student in the room.
And lots of childishness going on here. She know one speciality but she wants him to rule out everything in the world to make her happy?!
Then him reacting back like a 5 year old just makes them all look like idiots
ā¢ in reply to
My dr would not accept anything other then I had depression and anxiety. That is all he would treat me for. Hence 3 psychiatrists. Just glad š I've left him even if new dr never heard of FND at least he is willing to learn with me. šššš
ā¢ in reply to
Yeh I think it's perfectly acceptable that a doc doesn't know but wants to. Good luck with this one.
I know from my training that to be a children's doc in uk you have to be the best. Same in many countries I have visited.
We used to always joke that if you were the worst doc your only option was GP practice as it is true that a lot of docs cannot function in other areas.
But I must say there are docs who are great GPs and that is where they want to practice and I give them credit because say you are a respiratory doc in a hospital you get the patient diagnosed and sent to you. Then you are working within your specialised area whereas good GPs are starting from scratch and will form a diagnosis and then treat you if it minor or manageable or refer you onto the appropriate specialities.
I sometimes compare a really good GP to a vet. People think vets are students who couldn't hack med school when in fact they have to learn the anatomy and physiology of hundreds of species then maybe specialise a bit.
Dan and Amilla are right on as they describe what we all know of FND. I agree with Dan, Do not 2nd guess yourself. been there done that and it really doesn't help. Its not that FND is caused by psychological, but the other way around....FND for what ever the real cause....leads to or causes the psychological component. These doctors will drive us nuts. lol...right?
Thanks Dan and Amilla, love reading all the posts and thank you for having the ability to always make me smile. I agree Dan, they do not know what to do with "rare"....so I bet many are indeed chasing their tails. i might just have to do a visual next time in a neurology appointment. Might need to have a little zebra with me. lol
sending positive thoughts so we can get these doctors to look at all possibilities.
Amazing words Patti. You have instilled the "zebra" in all of our fights. Psychology has always been presumed but not in a good way. We all know about the stacking of odds just as we leave the gates for the run. I do not know why I am still around but I will make sure that medicine knows when and why I leave.
Amallia will be the only true medical professional I will have ever known. If only they followed her example....
Best for today. You are good friend.
Dan / Seattle
ā¢ in reply to
Um I just renamed you Dr Dan in another thread š
ā¢ in reply to
Amallia.
Doctor No.
I want to be oceanographer. That my dream as child.
Too late you think?
Dan /S
ā¢ in reply to
I always wanted to be a stunt woman too late now I think
Dan, you and all those here help me gain the strength I need. today has been a hard day. almost fell asleep in work..not sure but I fought off a few head bobs...hoping tomorrow will be better. Only working 3 hours then I'm off to get an echo....will be interesting. fatigue has been so harsh...I will also be picking up my CT results. cannot wait to read what they found or not. time will tell.
Positive thoughts my friend. perhaps some day they will all figure this out. Patti
Thanks Patti, I wouldn't have opinions or answers without all the words of people on this website. I'm a detective when it comes to medicine.
Sadly i have admitted before I watch the real housewives of NY, NJ, BH I used to give my friends a hard time but now it suits my mental concentration š³
But yesterday the girl with the autism kid was saying she doesn't feel he is making progress until she sees old videos of him and he has come a long way.
Unfortunately I never film myself or take photos but for those of you who do look back at yourself before FND as that is the real you. This is just a glitch we will get to the bottom of š¤
ā¢ in reply to
Amallia.
Right words at right time - yet again.
Don't know about real housewives but still watch the old, old, old TV show called "Mr. Ed" any chance I get. Its about a talking horse. Hilarious. All you have to do is just be able to laugh. That's it...
Dan / Seattle
ā¢ in reply to
I remember Mr Ed. I'm really into Seth Rogan, Jonah Hill, James Franco, Channing Tatum and most movies by Judd Apatow. I think they are the comedy crew of today. I'm not depressed but I used to laugh a lot and had smile lines on my face.
They have gone now sadly, but now and again I will remember to put a DVD in such as Magic Mike XXL more for the ladies but very funny and Tropic Thunder I only watched recently but I laughed so loud the whole way through. I think Robert Downey jr is a great actor but his character playing a character that he then believes is his real self is too funny. Need to watch that again soon. It's the little things š
I agree. Any detective is a relief. Where is Peter Sellers when you need him. All time favorite was him in the movie "Being There.". Please watch this if you have not. His finest work in comedy with touch of feeling.
Well I have to say that I have total sympathy for your symptoms. I have had no accident, trauma, upsets , and yet up until 3 months ago was a completely healthy active person, working a physical job doing deliveries , and still continuing although albeit with great care. I too am now very unsteady on my feet, feeling like I could fall over if I so much as move my head too quick or in the wrong direction. As well as other symptoms, which is the main reason I had my mri, which thankfully came back normal, this is now the main problem I have and the tremors. When I saw the neurologist on Friday, he very quickly performed an exam, 2 of which of the tests were balance, both of which I failed and fell but he proceded to tell me that it was FND. At first I thought thank God they can treat me , only to discover the way he worded it was , it was a functional disorder and basically I am the one that is controlling my symptoms, which didn't go down well, and I think he tried to backtrack when I said I was insulted. I never go to the doctors, have brought up 5 children and I considered myself very healthy up until March. I sure as hell haven't dreamed up my symptoms and may lose my job due to the balance issues and being a risk, which I would be devastated. I think that there are good neurologists, who are able to with care and consideration explain to patients, about this disorder and not make us feel like we are thinking these symptoms up.
I hope you get some answers on here and hope that you feel better soon. Would love to know what they say about your balance issues and how they treat it.
Thank you for not letting docs dump this on your back. I wish I were like you guys when I was much, much younger.
Dan / Seattle
ā¢ in reply to
Dan are you holding out on us? Are you really 100 years old?
ā¢ in reply to
Amallia.
Being a centenarian gets you in the movies for free here in USA. Too bad I can not see screen anymore...
Dan
ā¢ in reply to
I went through first fall right leg going. Then loss of power to all limbs then nothing for 11 months then fell in house, broke bones, again couldn't get up then year after around 6 months of falls all right side must be losing power as my left knee was taking the brunt. I had permanent bruising then rash to knee and whole lower leg then right leg started so I had both knees and lower legs covered in rash just from falls indoors. Haven't had a fall in months now. Lots of staggering against things but not like the drop fall described on neuro symptoms.org.
Don't give up today. This whole thing is so random.
I hope you didn't hurt yourself too badly.
š¤šš¤
ā¢ in reply to
Amallia.
You had real tough time with falls. Mine just weakness that magnifies what happens when foot gets off on edge. Not controlling limbs.
Most of it is nerve damage to motor network which has atrophied muscle structure. Sensory system shot so have no idea what I did to it.
Glad your falls have stopped for now. No rashes. That aggravating and stings.
Hi all , hope you are all as well as you can be and had a good day. Well being new I am not sure what avenues you have all been down with regards to getting knowledge about FND , but I have just sat through a very informative you tube video which was uploaded in April , for FND awareness day and although it was nearly an hour long I found it very informative and very helpful and made me feel a whole lot better about it all. Just thought I would let you know, assuming that you haven't already watched it. I can't share the link but it's called FND awareness 2017 , interview with Professor Edwards. Hopefully it may answer some questions.
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Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
I have been told by a Neurologist I have NES, I believe I have FND, Help!
Hello from a gal with FND, autoimmune considerations, and more..
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Moncheyne
Another report I've had from someone who was misdiagnosed with 'FND' ...
