I was reading the trail about the person thinking she will simply soon be diagnosed with FND. Somewhere in the responses someone mentioned viruses in the brain. Well just the other day my hubbie was told by someone (although not an FND sufferer) that when they MRI scanned her for some mystery illness, strands showed up through her brain. She was told that these were the scars left from a brain virus and that was probably what was causing conditions similar to ours. Makes you think doesn't it that perhaps there is/has been a virus in our brains that has cleared up but left scaring. Wish someone would investigate that possibility. I think my husband was given a reference about this and I'll ask him tonight when he gets in from work.
I'm so fed up with dumb Drs saying things like pseuydo seizures. Yeah I bring on these horrible attacks 2 - 3 times a day just for the fun of it! I wish I could just burn all my medical notes so they never see that title ever again. Why aren't these people trained. They have to do mandatory professional training every year - they should make understanding rare illnesses a compulsory element of their training over the next year. I know Dr Stone says it's relatively common in his clinic but that's because he is dealing with neuro illnesses all the time. He gives as an example that in a town the size of Birmingham would yield 60 - 90 people with the illness. Birmingham (UK) has 1 million inhabitants. Do the maths - it's NOT a common condition.
Hey ho, the joys of just making things up in your head - FND = imaginary friend? I think not.