Importance of checking levels

[Mostew]

I have been taking vit D 5000 for about 9 months as I was advised high dose might be beneficial .

Just had blood test it’s to high . 160 . top end is 120. So have stopped and recheck in 3 months

[hunter5582]

I am at 3000IU of Vit D qd. that has me at 47 ng/mL (reference range 30 - 100). I may up it a bit, at least during the Winter. Will see what the Integrative medicine doc says.

My NF-Specialist doc suggested I stay on it all the time since NF1 can be accompanied by Vit D deficiency. I expect taking Nexium every day does not help. Also Vit B/Folate and magnesium deficient. Just goes to show how important it is to pay attention to our nutritional needs.

[Mostew in reply to hunter5582]

Morning

Yes I was told to take it long term to . I’ll see how much it goes down in 3 months.

Hopefully yours is heading up

It’s an ongoing challenge trying to balance things isn’t it !!

[hunter5582 in reply to Mostew]

it is a balancing act. Rather like riding a unicycle on a high wire while juggling knives with no net. The whole iron deficient but not too iron deficient balance is also really tricky and not without consequences.

All the best my friend.

[Mostew in reply to hunter5582]

Lovely poetic analogy.

Your words are always an inspiration to keep me enthusiastic.

Warmest wishes to you

[Otterfield]

Thanks for sharing this - something for all of us to be careful about. Hope your levels drop to the correct point soon.

[Mostew in reply to Otterfield]

Thank you .