MPN Voice
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E T and Vitamin d

Hello everyone, wondering if anyone else is low on vitamin d. I was seen in immunology this week. My consultant is shocked I'm still walking around, my vitamin d level is 7 and it should be 75. Was told got to be careful of falling, tell dentist if I attend dentist. Consultant asked how my memory was, I said terrible, consultant said she' not surprised.I've been put on vitamin d meds, more blood test February and seeing consultant.

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My GP noticed a vitamin D deficiency in me a couple of years ago, was on high dose Vitamin D tablets for over a year but, fingers crossed, all seems ok now and am no longer having treatment. Good luck

Janet

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Thank you I'm on vitamin d meds for 6 weeks at the moment. Did you feel any improvement being on them

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Many change I noticed was my mood improved. Had not really registered that I was a bit depressed, guess it comes on slowly, but it was a case of just feeling lighter in myself and looking back I could then see that I had been depressed.

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I have felt very low the last few months, but I've classed it with my dad he had prostate cancer and it spread unfortunately he passed away 4 days ago

Lin x

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Oh lin, my condolences, so sorry to hear that. You have been through it. I hope the treatment helps you. My best wishes

Janet

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Thank you x

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Thank you, it’s not something I’ve thought about but will do now.

Kindest regards Aime xx😺😺

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Dr prescribes Vit D for me every month, little phial that I snap of top and down it goes. If we keep out of sunlight we need it....!

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That's what I'm taking twice a week for 6 weeks then see consultant

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Hi linphy

It was discovered I was vitamin D deficient about 2 years ago, before my ET diagnosis. I’m now on meds’ for it but don’t know my levels. I presume they are okay as nothing has been altered. I was told then it is a symptom of fibromyalgia but maybe it was the ET all along.

Your level sounds really low. Hope they can get you ‘up and running’ so to speak and have a careful Christmas and New Year!

Gill x

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Hi. I also showed low vitamin D on a blood test. Have been taking a supplement for 6 weeks and now advised to buy my own over the counter as GP said they don't prescribe it. She said it's not uncommon living in UK.

All the best

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Same for me once I've finished course what consultant prescribed I have to buy over counter.

Best wishes

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