E T and Vitamin d: Hello everyone, wondering if... - MPN Voice

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E T and Vitamin d

linphy profile image
13 Replies

Hello everyone, wondering if anyone else is low on vitamin d. I was seen in immunology this week. My consultant is shocked I'm still walking around, my vitamin d level is 7 and it should be 75. Was told got to be careful of falling, tell dentist if I attend dentist. Consultant asked how my memory was, I said terrible, consultant said she' not surprised.I've been put on vitamin d meds, more blood test February and seeing consultant.

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linphy
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13 Replies
eastwood1932 profile image
eastwood1932

My GP noticed a vitamin D deficiency in me a couple of years ago, was on high dose Vitamin D tablets for over a year but, fingers crossed, all seems ok now and am no longer having treatment. Good luck

Janet

linphy profile image
linphy in reply toeastwood1932

Thank you I'm on vitamin d meds for 6 weeks at the moment. Did you feel any improvement being on them

eastwood1932 profile image
eastwood1932 in reply tolinphy

Many change I noticed was my mood improved. Had not really registered that I was a bit depressed, guess it comes on slowly, but it was a case of just feeling lighter in myself and looking back I could then see that I had been depressed.

linphy profile image
linphy in reply toeastwood1932

I have felt very low the last few months, but I've classed it with my dad he had prostate cancer and it spread unfortunately he passed away 4 days ago

Lin x

eastwood1932 profile image
eastwood1932 in reply tolinphy

Oh lin, my condolences, so sorry to hear that. You have been through it. I hope the treatment helps you. My best wishes

Janet

linphy profile image
linphy in reply toeastwood1932

Thank you x

Aime profile image
Aime

Thank you, it’s not something I’ve thought about but will do now.

Kindest regards Aime xx😺😺

Inca profile image
Inca in reply toAime

Dr prescribes Vit D for me every month, little phial that I snap of top and down it goes. If we keep out of sunlight we need it....!

linphy profile image
linphy in reply toInca

That's what I'm taking twice a week for 6 weeks then see consultant

Jellybean129 profile image
Jellybean129

Hi linphy

It was discovered I was vitamin D deficient about 2 years ago, before my ET diagnosis. I’m now on meds’ for it but don’t know my levels. I presume they are okay as nothing has been altered. I was told then it is a symptom of fibromyalgia but maybe it was the ET all along.

Your level sounds really low. Hope they can get you ‘up and running’ so to speak and have a careful Christmas and New Year!

Gill x

Mrs_Average profile image
Mrs_Average

Hi. I also showed low vitamin D on a blood test. Have been taking a supplement for 6 weeks and now advised to buy my own over the counter as GP said they don't prescribe it. She said it's not uncommon living in UK.

All the best

linphy profile image
linphy in reply toMrs_Average

Same for me once I've finished course what consultant prescribed I have to buy over counter.

Best wishes

Melanie66 profile image
Melanie66 in reply toMrs_Average

Hello ,

Just to say I’m on Vit D ....only began last week .... really do feel an improvement (energy levels)...my point is that my Doctor prescribed them to me and said they are a must when your levels are not where they need to be ..... hope this helps .... Lainie x

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