MPN Voice
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stress and anxiety

Hi all sorry havent been on here lately , lots of personal losses overe christmas and prior, my hubby is. now in hospital also with bad pnuemonia , im finding it hard to manage day to day things on my on . didnt realise how much i rely on him ,,, since having PV /ET jak pos i get so drained at doing even smallest tasks , i have been going to and fro hospital and no i have gone down with stinking cold myself, and he needs me to see him he has son n daughter also who visit my anxieties levels through the roof and my heart palpations more regular , stress from lots phone calls from friends etc but i can only tell them what i know about hubby so i have now asked rev at his church to tell them i know people care but do not want to be inundated with lots of calls , im very fatigue with HU etc as it is cant believe its New years eve and i dont want to celebrate or see anyone or go on FB etc however i do want to wish each and everyone one of you on here a VERY HAPPY AND HAPPY NEW YEAR best wishes Holly xx

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So sorry to hear this, I couldn't read and run. Just sending best wishes for an improvement for your husband and for you too. Healing, calming thoughts being sent your way Holly.

Grace x

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Holly

That’s such a lot of stress for you and glad you asked the Rev for help and maybe some more people from his church could help too .

You need to take care of yourself too .

Hope hubby is soon recovered and home .

Try and rest as much as possible in between visiting the hospital I know how exhausting that can be .

You don’t ‘ have to ‘ celebrate New Year the sun will rise on another day and I hope it’s a better one for you .

You know I’m here for you

Xx

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Thanks Helen , problem is also my former dad in law passed away boxind day also who i was close too its just all at once eh now i have a cold so staying away from hospital today but i know hubby dissapointed ,hus daughter and son are with him but he last had same illness 15 yr ago but alit younger tgen he almost 75 now also he had a pnuemonia jab 2 year ago so i thought he woukdnt have it so bad ! he dont like taking pills and there pumping him with quite a few ! he can be stubborn at times but got no choice in there eh Bless you Helen hope your doing ok yourself xx

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Hi Holly I’m so so Sorry to hear this

I’m sure your hubby will be getting the best care ,

you need to take care of yourself to , I’m sure people understand how your feeling & will listen to Rev & will be praying for you both ,

Your friend are all here for you

And sending you lots of warm wishes

To you & your hubby &

Hope 2018 is the turning point for you both

Love Pam xxxxxx

( little Carter’s had Pneumonia only 3 weeks ago & is doing so well now )

We’re very grateful for our wonderful NHS & Dr & Nurses xx

Stay strong my friend xxx

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Hi Pam thank you , just everything all at once hubby has about 3 different infections going on , it was hard work for me this christmas with him being unwell and unable to help me i still had family round but now im clearing out all left over foods that normaly my hubby would finish off ! he had pleurisy & pnemonia 15 year ago but wasnt in hospital he coming up 75 now , i didnt relise how much he did do here i find house so big to manage with my other ailments as well as mpn he feels bad he is ill also , sp pleased Young Carter got through it all bless him you take care Pam xx

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I’m hear for you don’t forget xxx

We can chat either phone or email

I can text u , it’s good to talk & know people or hear for you

You’ve been given lots of lovely

Well wishes take comfort from this

My friend . Love Pam 🙏💗

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Dear Pam thank you you for that , i know you and everyone on here are right , now im down the bad cold i feel wee bit scared on my own i have son etc but nit same when you have someone living with you eh just broke tooth / filling last night out the blue so dental job tomoeeow now also grr fixable though i know ,just timing eh had very quite eve last night first time ever ! love Holly xx

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Hi Holly, so sorry to hear your hubby is in hospital. They do recover quickly with the right antibiotics - my hubby has had a couple of bouts last year. He got the jab against pneumonia and hasn’t had it since.

You have got to think of yourself now. He is being well looked after and your kids can take on the visitations to hospital especially when you now have the cold yourself and are so fatigued. The rev at the church is helping but perhaps other friends instead of phoning can go and see him. Perhaps your kids could organise a rota for visiting to take the pressure off you a bit.

This will all pass soon and everyone else will be back to health except you if someone doesn’t look after you too. Please try and rest, your hubby will be fine and is being very well looked after.

Kindest regards Aime xx😺😺. Sending you a load of E HUGS.xx

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Hi Amie thank you for your good wishes dont think jab helped him much he has it quite bad and i agree with all that you say you take care my friend xx

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Oh Holly, sorry to hear all of this, let’s hope that 2018 brings you better times, and that your hubby recovers soon, he is in the best place to get better. But you must look after yourself as well, I know it is easier said than done but you have to remind yourself that rest is very important to you as well, be mindful that if you are unwell who will look after you, so try and get some rest my friend, and if you just want a moan, then moan away to us.

Let’s hope that hubby is home soon, and that 2018 is a better year for you.

Jean x

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Thanks Jean , yea that why i decided not to go and see him today i know hel have a few visitors he not used to nit doing anything . I have a cold also so maybe nature telling me to stay home and rest take care jean xx

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Hi Holly

So sorry to hear you and your husband are having such a very difficult time . I just want to send you my very best wishes that your husband soon recovers and that you can get some help and support too. Please don't be worried at asking friends or family for a little help especially whilst you are struggling so much with your husband being ill too. I am sure family and friends who are phoning to ask how you both are would be very willing to offer you some help even if it is just something as simple as shopping or running you to the hospital. Although e are often reticent to ask for help - when you do you find that friends are often very happy to be able to help in a practical way .

I wish you and yours and all our MPN family a happy healthy and as fun filled 2018 as possible .

E hugs to you

Dianne xx

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Thank you Dianne, hope 2018 is good to you , hubby home now and on the mend best wishes Holly x

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Oh Holly you are having a rotten stressful time. I can understand how you feel my partner went into hospital just before Christmas last year and he was in all over xmas and new year ( about a month in all). I can appreciate how you must been feeling right now. I was so stressed and exhausted too.

I just wanted to say I am thinking of you and your hubby And send all good wishes for his speedy recovery.

Take time for you and take care of you too Holly and don't feel guilty about how your feeling it's natural. Wishing you as happy and healthier New Year. Sending virtual hugs. Lizx

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Thank you Lizzi wishing you also the best for 2018 Holly x

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Hey Holly just wondered how hubby is doing now and how you are feeling? Really hope he is on mend and things less stressful for you. Liz xx

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bless you Liz, like everyone on here i agree gosh a month in hosp , hope hubby all good since , Barry been having few UTI infections last 4 months as well because prostrate issues so im gussing he became vunerable to get illness there saying his platelets are low also ! but dont know why you take care and thank you xx

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Hi Hollie hope your hubby gets well soon and you get over your cold soon .sounds like you doing well having your family round and keep going to the hospital rest when you can and has others have said accept help when you need it not a good way to start a new year but keep positive and look after your self best wishes Poppy

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Hi Holly,

Sorry to hear that your husband isn’t too well. It is particularly stressful and tiring for the partner when a loved one is in hospital. Even worse that all of this has happened during the Christmas period.

Your present scenario reminds me of when my husband was in hospital a few years ago. I can relate to what you say, especially dealing with the additional phone calls when all you want is a bit of space. My husband comes from a large family. I chose to update one sister only after every hospital visit and asked her to inform other family members.

I’m sure your husband will understand your own valid health reasons for not visiting him. As people have already said it is important that you look after yourself too.

You will get through this.

Mary xx🌷

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Hi Holly,

Sorry to hear that your year is ending on such a difficult note. Just make sure you take the time to look after yourself, the hospital staff will do the same for your hubby. Hope it doesn't take long until things are better for you and you get hubby home soon, fully recovered.

xx

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Hi all thank you so much for all your replys and support , i was hoping to visit hubby later and feel terrible that my cold as worsened , i missed yesterday because of it my step daughter will be seeing him again but i know hubby likes me there but yes he also now worrying about me ! to add to it all part of my old filling broke of last night so it will mean dentist tomorrow .my problem is that people who can visit as well as family are all down with heavy colds ... time of year eh ! none the less im aware and mindful i need to look after my self also many thanks best wishes to you all Holly xx

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So sorry to hear about your husband Holly. I hope he will soon be on the mend and be back home with you. It's hard work visiting someone in hospital, especially when you are not feeling well yourself. I hope 2018 is a better year for you. Look after yourself. Karen x

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Dear holly, your husband is getting the best care and is responding I hope. When he comes home, you will want to look after him with a smile and be looking good and positive. You won't be able to do this if you're ill with fatigue etc. I take it he loves you as much as you love him. So he will not want you getting ill, he will feel guilty, like it's his fault. Do ask for help, people genuinely are much happier if you delegate, rather than having to guess what could be helpful. Take care and look forward to the better times ahead. Xxx Carole

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What a dreadful time you are having Holly,like everyone else I send my very best thoughts and hopes for you and for hubby s recovery,keep as strong as you can ,we all are with you and understand your misery. Things do pass and get better,this is the worst time of year for those of us with a worry ....soon it will

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Hi sally , thank you ,happy new year to you , They discharged Barry last night . but as we all know , patience always sent home early nowadays before fully recovered ! So not easy ,for there spouses , He has 2 days of antibiotics left to take , but he is very tired and not eating much , so will see how it goes with him day by day hope alls well with you all the best Holly x

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That's a step in the right direction Holly,he will soon feel better at home,appetite will return after anti biotics are over.You will too ,it's awful being alone to cope when we are not well ourselves.Very relieved for you.Our daughter suffered a serious accident just before Xmas,she too was released early from hospital.....unable to walk..but they were short of beds and had the Noro virus !!!So like you we just wanted the festive season over ,did not want any part of Merry this and that. We too now are a bit happier ,as tho she faces a long recovery,she is cheerful.So things do get better ,slowly perhaps,lots of support here on site,we do comfort each other.Speedy recovery for you and hubby,keep strong,Very warm thoughts from France,e -hugs and Best Wishes.Sally

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Sorry dogs trying to cheer me knocked pad so words disappeared....e- hugs,Sallyxxxx

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Sorry to hear that you are going through such a difficult time. I hope the combined strength of all your friends on this site will help to lift you up. We are thinking of you and wishing for better times to come along for you very soon. Very best wishes, Jan x

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Oh Holly, I'm so sorry your having to cope with all that.

I hope your husband gets better soon, but equally important that you take care of yourself, you can only do what you can Holly, and I would agree and say yes something is telling you to look after you. Your hubby has the nurses etc taking care of him, and yes it would boost his morale if you could visit, but you have to think of you for a bit now, and rest.

People will understand why you want to drop off the radar for a while, you just make sure you keep warm and rested and by giving yourself that little bit of tlc you'll be back to feeling well and coping very soon.

life can be tough with an mpn in normal circumstances, so you just take a deep breath and don't worry about phone calls and visits for a while.

Sending you big hug and lots of wishes that you and your hubby both get better very soon 🤗

Jacqui x😊

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I'm so sorry to hear all you are trying to cope with at present. What an enormous amount for you to be carrying. You are in our thoughts. Please take care of you.

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So sorry about your husband, I hope you are both feeling better soon. The only way is up now! Sending virtual hugs.

Lizzie

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So sorry to hear all that you are having to cope with, but please stay strong and try and find some me time - you really need it. Would meditation help you? I am sending you love and healing and hope your husband will soon be well and back home? All the best for 2018.

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Thank you nivana , yes he now home , but seens a tad deppressed he so used to being out n about or working in the garden this comes hard , he never usually ill ! best wishes Holly

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Sending special thanks to you all that respnsed to my post , sorry i cant answer all of you at present but im so grateful for youe support my friends so happy new year and stay healthy as much as you can all the best Holly xx

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