Season’s Greetings for you and your beloved ones everyone.
I am new here .
I am 45 years male and a husband of wonderful supportive wife.
- Had it in 2007, very rare (myeloproliferative disorder) (15 in 1 million) with positive gene mutation.
After 6 months medication, re-tested, gene came negative. discontinued medication 1 year later and been free since.
- February 2017, Eosinophils WBC raised a little. Had the mutation test in September 2017 and came negative. Other CBC were within the norms.
- had it in 2013, also rare (4 in 1 million) , a pancreas tumor (mine was benign) it produce too much insulin and lower blood sugar dangerously.
- Went to Operation and removed tumor, pancreas tail and the spleen as collateral damage.
Suspected PV (by me)
- Had high hemoglobin (16 to 16.5) since 2007, my hema did a test for the high hemoglobin disease (I think he meant PV) it was negative .
-End of 2014 I had some red cheeks, itchy skin in my face and elbows area after warm baths, I thought it skin allergy. no other symptoms than that.
-During last 3 months I developed these symptoms respectively:
-Mild Left hand pinky finger pain then right ankle pain which come and go.
-Mild short breath, not always.
-Feeling of swollen feet but they are not.
I thought it is kidney problem so did some tests and kidney was fine,
and HB :16.9 Hematocrit : 0.51 borderline not flagged by the Lab.
Settled for a week and then came back with new feeling of "irregular heartbeats", slow heart rate and low blood pressure (100/60). Did the same blood test after one month and the results were:
Hemoglobin: 17.5 - Hematocrit: 0,53 L/L - Potassium: 5,5 (range 3,2 - 5,1).
I discovered form my last two years lab results that I had the same high findings of Hemoglobin, Hematocrit, Potassium
A week ago, went to Cardiologist and everything was OK by him, he mentioned blood disorder after seeing the results.
Googled the symptoms which gave me PV. Since then new symptom were added everyday:
Mild Headache, Blurred vision, very mild hot feet, , short breath not always, lower back pain, sudden right elbows joint pain lasted 2 days, finger and ankle joint pain, very mild swollen hands and feet
Planning to see my hema next week.
So, I after this boring long timeline, and if you are still reading, my questions are :
1 - Form the symptoms and timeline, do you think it is PV?
2 - Can PV remains undetected for two years even though I was doing periodical 6-month check-up with my Endocrinology Professor who didn’t catch any problem?
3 – Can the symptoms develop so fast (in a week) or it is my mind and imagination applying the symptoms I had read?
Thank you for any similar experience that you might share.