I final decided to start the hydroxy. 4 weeks ago and since have had two blood tests. The dose was 2 x 500 daily. I have had a few reactions that I would like to run past others on here.
Prior to diagnosis I had no symptoms and the one that perplexed me most, when asked by the consultant, was bone pain. I am now acutely aware of this as I have bouts of pain in arms and legs which is definitely in the bone. I asked the consultant about this as it has only occurred since taking the drug, he thinks it is the condition not the Hyroxy. My thoughts are if the drug is attacking the bone marrow is that the cause of the bone pain?
My relevant blood levels have all dropped but not to the extent the consultant would like so has upped the dose to 3 x 500 on alternate days and go back in 4 weeks.
I also get, irregularly, a vibrating sensation similar possible to a panic attack never had one so cannot be sure. Most disconcerting, has anyone else had this?