Had Jak2 test in March and searching for information led me to this forum. Saw consultant in middle of June and he told me I was Jak2 positive and had PV. Have had 3 venesections since then and due to see consultant again this week. I'm 59, have previously had a heart attack (2004) and am waiting for results of an MRI scan because of a gallbladder/liver problem (probably needs an op to fix). Was diagnosed with atypical migraine end of 2000. Some questions I wonder if people can answer if they have any similar experience.
1. Could the heart attack, atypical migraine be related in any way to this condition, even if it's only just been diagnosed. Remember the cardiologist telling me I had sticky blood.
2. Since beginning of last year, have suffered a lot from bloating, developed an intolerance to rice and suffered from heartburn. Not seen much about those kind of things. Has anyone else had anything similar to that.
3. Do you folks keep a written record of blood test results and are you comfortable asking your consultant about it. (Don't want to waste a busy person's time asking things unnecessarily).
4. Anyone had an operation with this condition? If so, did things have to be done differently because of this condition?
Thanks for taking the time to read this and for any advice anyone can give.
Hope everyone is doing well