Having ET

[Jbut]

After 3 mini strokes found out i have ET,that was 8 years ago at the age of 39,been on interferon alpha 2b since then been lucky side affects not to bad,just worried long term of affects of drug on my health

[Mazcd Partner MPNVoice]

Hi Jbut, glad to hear you are doing well on Interferon, being on any medication long term is a worry to all of us, speak to your haematologist about this and get their advice. Maz

[Jbut in reply to Mazcd]

I will thankyou brill that i have great people to chat with who understand on this site x

[harleydavidson]

Hi Jbut. My heam told me that most of us don't tolerate interferon for many years as eventually we will feel very depressed or have permanent flu like symptoms. I'm nearly at 3 years and feel ok and would like to stay with it until it stops working for me. Do you have any long term affects? Mel x