Hi I am new to this site. Can anyone recommend a good haematologist in the Midlands? I was diagnosed with ET 2.5 years ago. I see a different haem almost every time I go for a checkup and it is very difficult to build up a relationship of trust with them. They seem to know very little about the condition (I some times feel I know more than they do with the help of MPN voice). I thought I had come to terms with the condition but following a recent emergency admission to hospital with unstable angina, resulting in two stents being fitted, I have been very down about both conditions. I feel very tired constantly but don't know if it is the combination of both conditions, the medication or both!
I also suffer with arthritis in my feet and hips and am finding it difficult to exercise to help with the fatigue. My platelet count is currently around 400 and is generally kept under control by hydroxycarbamide, though I have yet to see what effect the new medication for my heart condition may have had on this. I just want to find a consultant who cares and not feel that I am just a number in a huge out patients department. Any help would be appreciated.