I have been diagnosed with Polycythemia as a condition rather than a disease so not PV. After over a year of hospital tests my Consultant still cannot locate the cause. Venesection has eased the matter but concerned at not knowing of the cause and thereby a solution.
Does anyone else have such a condition and if so has traced a cause and any treatment.
Looking for a referral. Any ideas for London who would be the best Consultant to see.