Mid Stereotactic Radiotherapy treatment - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

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Mid Stereotactic Radiotherapy treatment

SandraLlew profile image
4 Replies

Hi all, I hope you are all all well as possible and staying positive.

I am mid way through my 5 treatments and am really tired, my shoulder feels as though it's going to explode with pain from the stress position to have the treatment.

Anyone else had/having this treatment? Wondering how long the tiredness will last. For context I had heart surgery 4 and a half weeks ago so still recovering from that, and expect to start cardio rehab in a couple of weeks.

Thanks for reading.

Sandra

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SandraLlew profile image
SandraLlew
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Elt79 profile image
Elt79

Hi - I had this in 2019 - I experienced extreme tiredness for several weeks, at least a month, after treatment - exhaustion was how I described it. You obviously have also had major surgery to deal with well which can’t be easy. It does pass but takes a good while. Wishing you all the best x

SandraLlew profile image
SandraLlew in reply to Elt79

Thank you for telling me this, it's easier to deal with if you know what to expect.

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Hello Sandra,

I'm sorry to hear about your cancer, and the pain and fatigue you are suffering. this must be very difficult to live with. Hopefully more people like Elt79 can share their experiences with you. Given that you've had heart surgery in addition to your treatment sessions, the stress of being ill and the fact that you are experiencing shoulder pain, it's not surprising you feel exhausted. This is a lot for anyone to be going through. I would encourage you to share your symptoms with your medical team who may be able to offer practical advice particularly on the pain you are experiencing. Be kind to yourself and rest when you can. You might find this leaflet on managing lung cancer symptoms helpful roycastle.org/app/uploads/2...

Support is available , we have a range of support services, from one to one support to online support groups through zoom , if you are interested in any of these you can register through this link: roycastle.org/help-and-supp... Or by emailing Ellen.Knapp@roycastle.org

Our campaign section provides encouraging accounts from those living with lung cancer: roycastle.org/campaigns/

The Maggie’s centres are a great place to have a cuppa and a chat, they provide practical, financial and emotional support; maggies.org/

I hope some of this is helpful Sandra, but if there is anything else you would like to discuss you can email ask the nurse at lungcancerhelp@roycastle.org or call our free phone nurse led helpline number on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600.

Wishing you all the best

Roy Castle Support Nurse

SandraLlew profile image
SandraLlew in reply to RoyCastleHelpline

Thank you for all of this, the GP has been helpful with pain meds and they are helping a great deal, I will be attending a local cancer support group when I'm able but hopefully as a person providing art therapy.

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