I keep hope alive

[gatonegro]

I was diagnosed as lung adenocarcinoma stage 4 with EGFR in september 2020 and keep on taking erlotinib. I am ok so far. Thanks god.

[Jigsaws02]

Hello gatonegro, I started Erlotinib end of May and am coping. Typical side effects but not too bad and there has been some shrinkage. Pleural effusion has had to be drained twice but I’m not a candidate for permanent drain . I find if I keep moving I am so much better but I absolutely need my afternoon nap. Stay well.

[gatonegro in reply to Jigsaws02]

Hello Jigsaw02 I was diagnosed with stage 4 adeno Ca 4 months ago, also had pleural effusion. I had ct and revealed that effusion is göne % 95 around. Erlotinib works well, I just have rash and tolerable diarrea.

[Bow-19]

Hi I don’t have EGFR but have ALK another mutation. Do you know that there are Facebook groups providing support to people with EGFR? I am a member of the ALK UK and Worldwide groups. It might be worth joining one of the EGFR groups and posting there. Wishing you a good response to your treatment xx

[Bow-19]

This is one website egfrpositive.org.uk/

[Bow-19]

This is the other one egfrcancer.org/

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Dear gatonegro

Welcome to the forum and sorry to hear you have been diagnosed with lung cancer. It is encouraging to read that you are doing well on your treatment.

Hope you will find additional support from the EGFR support forums that Bow-19 has advised.

If there is anything you would like to discuss you can either email us at [e-mail] or call our free phone nurse led helpline number on 0800 358 7200

Kind regards

The Roy Castle Support Team