HER 2 lung cancer

[anne1]

Hi

Does anyone have the HER 2 mutation and if so other than the standard treatment for NSCLC have you been offered anything that targets the HER2 mutation?

thanks

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Hello anne1

I am sorry to hear of your lung cancer diagnosis, treatment guidelines for lung cancer can be found on the NICE website. nice.org.uk/guidance/ng122 This covers pathways for different types of lung cancer.

Unfortunately, NICE has not yet approved trastuzumab deruxtecan (Enhertu) for treating HER2-mutated advanced non-small-cell lung cancer in adults after platinum-based chemotherapy. It will still be worth speaking to your oncologist about other ways to access this drug they may be aware of possibly any clinical trials that are recruiting.

nice.org.uk/guidance/ta976

I hope you hear from others in the forum who have been in the same position. If you would like to discuss anything or have a chat you can call the ask the nurse helpline on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600, or you can email us at [e-mail]

Kind regards

Ask the nurse support team

The Roy Castle Lung Cancer Foundation

[anne1 in reply to RoyCastleHelpline]

Thanks for your reply. I would be interested to hear from you or if any members of the forum have self funded treatment with trastuzumab deruxtecan and if they have had positive results?

[monkeygirl62]

Anne1, I am not familiar with Her 2 mutation in lung cancer. I have limited SCLC and I would really like to know what Her 2 is. Is this something all lung cancers can have, this mutation? Hugs 🤗 and prayers 🙏, Alicia