I joined about a month ago after neurologist diagnosed me with FND. Thought I'd best say hi, instead of lurking in the shadows in a dressing gown surrounded by ecig smoke.
Never heard of this before the neurologist told me and not sure how to take it either. 4 years i was told politely and carefully it was in my head.
No traumatic causes to it. 4 years ago working as a chef, slowly developed a tremor, within a month i couldn't use a knife or a pen then within a week lost my ability to talk. Then anxiety set in and made it worse.
4years down the line and stairs are the enemy 🤷♂️😂. Still can't write and walking like I've pooped my pants. Should maybe consider a kilt to prove that's not the case quickly haha. The rigidity in the legs, more right side is dumb and that sudden pain is no love lost even though how much I've tried to enjoy it (it was a change of mindset thing).
Pain is the biggest pain so far 🤦♂️. They threw gabapentin, cocodomol, naproxen and propranolol for pain, stiffness and tremor. Like most here I'm not a fan of meds but I'm my own experiment atm.
I'll be honest, I'm not sure on the diagnosis but after 4 years I'm grateful to have a ball rolling. A step forward is good, as long as no stairs are involved.
That's my introduction 👍🏼. Scottish guy, 33, 4 super kids and newly diagnosed with FND.
Hope you all are doing well. I've read some folk here have it real bad, so hoping today hasn't been too awful for ye 👍🏼
Take it easy, Lee.