Anyone with hyperreflexia, clonus and twitching?
Sympthoms: Anyone with hyperreflexia... - Functional Neurol...
Sympthoms
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Luvic
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I get the muscle spasms but not all the time thankfully. Mine are mainly at night. As soon as I rest my body always decides to play havoc... I work in a pain clinic and find magnesium spray does help sometimes. Ironically it was others on this site that reminded me about mg. My main issues now is the shaking/ jerking though. How long have you had FND?
My spasms are mostly in my left feet and calf, but I have them in others parts of my body too, like glutes and arms. I've had them for three months, all the time when I rest my body. Sometimes I'm shaking and jerking, like today. I bought magnesium pills, hope they help. Have you done exams? What the docs say?
Hi there
Yes I experience twitchingvand clomus, usually in my right foot and ankle , the twitching is usually in my fingers and upper body how do you manage these ?
I 've had this sympthoms for three months and I'm terrified. Sometimes I can' t sleep because of it. What the doc says about your clonus?
Hi, yes I have exactly those three. Normal reflexes in my elbows but hyper reflexes from the knee down. Myoclonus in the trunk that feel like I’m being punched. And I’m losing muscle at the base of my thumb. I’ve been told it’s FND but I’m not 100% convinced.
Linlechelie, what the docs say about clonus? Have you done exams? How long have you had it?
Hi Luvic. Yes I had brain and spine MRI, multiple blood tests, lumber puncture, EEG. The myoclonus was quite severe so they kept me in hospital for ten days while they ran all the tests but they found nothing conclusive so just gave me clonodine tablets to quieten them down and sent me home. They said at first that I had small vessel disease in the brain but when I saw the neurologist a few months later, he said he didn’t think it was svd, but didn’t tell me what he thought it might be. I found out via my GP that he had written to say FND. No one explained anything to me, so it’s been the scariest, and most frustrating experience. The myoclonus is much better, but not 100% gone nearly two years later. My thumb muscles are withering away now and my reflexes are still hyper. I just don’t think those things fall into the functional category? I have an appointment with a new neurologist next Tuesday so I’m hoping to be a bit clearer, but I’m not counting my chickens! How long have you had your symptoms? Have you had much advice?
I’ve got Myoclonus and drop attacks. Of the neck, torso, arms, and legs but thankfully it primarily acts up when I’m tired and calms down when I’m at rest 
During a “breakdown” (that’s what I call it lol) I kind of restrict all movement if I’m in a place where I can do so and just try to focus on everything happening around me.
Crystallinecanine have you done exams? How are your reflexes?
Ive had eeg test and full brain mri when I was having a really bad breakdown. They were checking for seizure-like activity and when they didn’t find anything, the hospital neurologist said it was all behavioral health. When I went to get an official neurologist, they talked about it being a tic but they haven’t done anything for a long time! My reflexes with the knee tap are pretty good, they tell me that the right side of my body is weaker.
I've had FND since 2017, myoclonic jerking of the whole body ,usually if I'm standing in the one place too long. Plays havoc with my neck, it's like small whiplash. I can sometimes feel one coming on, like you can feel a sneeze about to happen. I do try to be kind to myself and if I'm going to have a bad day, then I take it easy. But I'm retired, so no work. I hope you find something that sets your mind at ease. Unfortunately the health system is so overloaded that ones with unexplained symptoms get pushed to the side. All the best.
