FND in children

[Ripley1]

Does anyone have experience of FND in children? A young family member who is almost 12 has been diagnosed with this. He is having a really awful time as are his family. Any advice would be welcome.

[Mum06]

Hiya, my 9 year old was diagnosed with fnd a month ago after months of hospital visits.

[Ripley1 in reply to Mum06]

Thanks for your reply. His mum has found it very difficult to connect with other parents of children with this condition. It is mostly adult sufferers who contribute to the various forums. He was diagnosed about 6 weeks ago. I will tell her to join Health Unlocked.

[Mum06 in reply to Ripley1]

I also found it quite hard to find others with children with fnd. I was told by our neurologist its quite rare in young children which is why i came on here to try find out more about fnd and see if there is advice from others with kids with it.

[Momofson]

Find a new doctor! Has this child had the antibodies tested for autoimmune diseases, like encephalitis? Any doctor can order the blood test locally and then the blood is sent to the Mayo Lab in Rochester, Mn to check for autoimmune problems. Also should check his thyroid, including antibodies against thyroid, TPO and TG. Don’t settle on something that will affect this child all his life and don’t give up. There is a real reason!Very important test. This child could also have Pandas. Are there mental problems involved? Seriously take him to a doctor that understands all this newer information. Get online and look for the web pages and ask questions. Facebook also has very helpful pages on all of this.