I don't want to start a war of words or anything of that kind as I find this site really really important to me and know that others do and it is a genuinely friendly place and a safe place. As we know FND is an umbrella term for a variety of symptoms of apparent neurological origin but which current models struggle to explain psychologically or organically (FNDHope).
It's just that I saw in a reply to a recent question on whether FND was curable that it wasn't but for those who had psychological problems once the problems had been identified then they were cured.
I have been diagnosed by Dr Jon Stone as having FND (Conversion Disorder). I am an FND sufferer like us all and attend his clinic regularly especially given the severity of my seizures (daily). I also unfortunately have a very rare (and equally misunderstood as FND) mental disorder. It is Complex-Post Traumatic Stress Disorder (C-PTSD). It is distinct from the more widely known Post Traumatic Stress Disorder. C-PTSD starts from a very abusive childhood, which causes irreversible damage to the amygdala in the brain. It leaves C-PTSD sufferers feeling prolonged feelings of terror, worthlessness, helpfulness, excessive shame and low self-esteem and continuous suicidal idealisation. As to the latter I have nearly died on a number of suicide attempts and on the last one actually arrived at hospital dead. They managed to rescuiate me, put me on life support, tubes everywhere bla bla bla. 3 days later I just strolled out of the hospital. My GP told me that the hospital does not know why I did not die - just another medical mystery. Whoae my life is being to sound like a plot from Scooby-Doo. Lol. My medical records note that I am a very high risk of completed suicide and my GP (from my last practice who I just adored for her willingness to explore new conditions and was incredibly empathetic) says she walks through her surgery doors every Monday morning waiting to be told that I have completed a suicide.
I suffer many, many of FND symptoms including the embarrassing loss of control of bowel and bladder - lovely when you nip out for a coffee at Starbucks! Not quite what the other customers thought was on the menu.
I was also assaulted by a paramedic on duty when I took a seizure which affected my legs, paralysing them. I was an inpatient at a hospital for my own safety and when being returned to the unit from A&E I took the seizure. The paramedic demanded that I walk to the ambulance and get myself into it. When I couldn't he simply assaulted me and dragged me into the ambulance. My complaint has been upheld by the Scottish Ambulance Authority who have apologised profusely. I have thought about reporting him to the police but am told that it could worsen my health.
I have tried CBT, DBT, mindfulness - nothing has worked. So I would agree that FND isn't curable but please don't neglect us who have FND (Conversion Disorder). We are just as distraught, in pain and have had our lives and careers turned upside down.
Thanks for listening.