Advice re support in nottinghamshire and with full body spasms

[Sunshine111]

I was diagnosed with FND 3 months ago after 2yrs of test. I was advised to have physio and psychological therapy, but my Dr s do not know where to refer me in Ashfield Nottinghamshire uk area. Does anyone have any ideas? Also I have tried various med to help with full body spasms /seizures, including Keppra, Valentin but nothing has worked and now not taking anything for this but having 20 to 30 each day,with lots of myooclonic jerks in between, any advice?????

[Newsteps]

Hi There. I suffer from full body spasms /seizures on top of constant jerks and other things. I'm on NO medication and do try and ride the spasms out although they give me a headache and leave me exhausted after 4 hours at a time. They have become less often ( however do tend to last longer) and I think it's due to listening to my body when I've pushed to hard, I've been attending crainial therapy sessions twice a week and have reflexology weekly too. No, it's not cheap but I decided as I'm not spending money on meds and will try alternative avenues as I'm not prepared to stay like this a moment longer than I have too. I really recommend the crainial what have you got to loose!? Good luck x

[Sunshine111 in reply to Newsteps]

Thank you and best wishes