Posts - MPN Voice | HealthUnlocked

MPN Voice

10,832 members•15,125 posts

All posts for September 2023

MPN Blues.

MPN is indeed a hidden illness and not something that is obvious unless you suddenly bring it up in a conversation that you have a (Blood Cancer) after that...

MPN is indeed a hidden illness and not something that is obvious unless you sud...

•1 year ago

Açai powder

Açai Has anyone taken Açai powder for a supplement I have PV and take 90 micrograms of peg interferon a week and a blood thinner . It's know has the Açai...

Açai Has anyone taken Açai powder for a supplement I have PV and take 90 mic...

•1 year ago

Turmeric

Is anyone on turmeric? I'm taking baby aspirin for PV but want to take turmeric for it's anti-inflammatory properties. I've read that turmeric is also a...

Is anyone on turmeric? I'm taking baby aspirin for PV but want to take turmeric...

•1 year ago

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Consultant in South Wales?

I have had PMF for a long time, now taking Ruxolitinib. I am thinking about moving to South Wales to be near family. Does anyone have experience of Haematology...

I have had PMF for a long time, now taking Ruxolitinib. I am thinking about movi...

•1 year ago

I have PV with no symptoms

I am 57 and was diagnosed with PV Axon 12 about 2.5 years ago. I live in US. I am in perfect health otherwise. No heart disease , low blood pressure, no...

I am 57 and was diagnosed with PV Axon 12 about 2.5 years ago. I live in US. ...

•1 year ago

new med

Just Brad my first 3 doses of Hydroxyurea. 2nd time I’ve had high platelets, first time about 3 years after the6 were stable had a TIA! As you can imagine,...

Just Brad my first 3 doses of Hydroxyurea. 2nd time I’ve had high platelets, fir...

•1 year ago

Suddenly dizzy

Hi all, I’ve got ET JAK2pos, was diagnosed 17 yrs ago, take Hydroxy 1500mg 4 x week, 1000mg 3 x week. In last 4 days I have been very dizzy…I feel as though...

Hi all, I’ve got ET JAK2pos, was diagnosed 17 yrs ago, take Hydroxy 1500mg 4 x w...

•1 year ago

MPN specialist in France?

Hi all, I wonder if anybody else here is based in France and would be able to recommend an MPN specialis? I am followed by a hematoligist for my ET (now PV)...

Hi all, I wonder if anybody else here is based in France and would be able to re...

JustKeepSw1mming

•1 year ago

One year on!

There has been a discussion on here today about how fantastically supportive this group is. I would like to add my voice to this on this, my first Re-Birthday!...

There has been a discussion on here today about how fantastically supportive thi...

•1 year ago

Fatigue issues taking Eltroxin combined with Hydroxy for ET

Wonder if anyone else with ET on this forum has had additional challenge managing intense fatigue when taking Levothyroxine, trade name Eltroxin, a thyroid...

Wonder if anyone else with ET on this forum has had additional challenge managin...

•1 year ago

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