MPN specialist in France?

[JustKeepSw1mming]

Hi all,

I wonder if anybody else here is based in France and would be able to recommend an MPN specialis? I am followed by a hematoligist for my ET (now PV) with Jak2. I would like to find an MPN specialist for a second opinion.

Thank you very much in advance.

Mary

[ainslie]

One good expert in France is Dr Kiladjian, he is also friendly , I may have mis spelt his name so best google him. He is very pro interferons but in a recent chat with him he suggested I stay on Rux for my PV, he said he had some patients on long term Rux doing very well, so he is not just Interferons.

[JustKeepSw1mming in reply to ainslie]

Thank you very much Ainslie!!!

I will look him up.

[hunter5582]

One of the world's leading MPN exprets is in France, Dr. Jean-Jacques Kiladjian. mpnforum.com/list-hem./

[JustKeepSw1mming in reply to hunter5582]

Thank you very much Hunter!!

[Anouchka in reply to hunter5582]

Strangely enough my oncologist/haematologist had never heard of him. I’ve kept name in abeyance in case I need a second opinion,,,, but doing well on Jakafi 20 mg with PV since Dec.

[hunter5582 in reply to Anouchka]

How very odd. Dr. Kiladjian is very well known in the MPN world. Here is a brief bio. vjhemonc.com/speaker/jean-j...

[Anouchka in reply to hunter5582]

Thank you Hunter.

[Manouche]

Hi Mary,

I would suggest you to listen to this interview (in French unfortunately)… Kiladjian is talking about the clinical results he gets with interferon :

open.spotify.com/episode/0c...

[JustKeepSw1mming in reply to Manouche]

Thank you very much again, Manouche!!

What a great interview. Finally, I have answers to some of my questions. Thank you for sharing!

[crapaud in reply to JustKeepSw1mming]

Hi,

Where abouts in France do you live?

Personally my MPN specialists were in Angers - I was referred to JJ Kiladjian in Paris who wanted to do his own tests for his dossier (I was being treated with Interferon whilst waiting for a SCT (MDS-U + MF).

I also have a contact in Poitier.

Take care

[JustKeepSw1mming in reply to crapaud]

Hi Crapaud,

Thank you for replying.

I am in Charente. Poitier is only 1.5 hours away from me.

Did you have to have your specialist to refer you?