Consultant in South Wales?: I have had PMF for a... - MPN Voice

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Consultant in South Wales?

Bulstrode5 profile image
12 Replies

I have had PMF for a long time, now taking Ruxolitinib. I am thinking about moving to South Wales to be near family. Does anyone have experience of Haematology Dept at Cardiff University Hospital? Any info would be v helpful. Thank you x

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Bulstrode5 profile image
Bulstrode5
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12 Replies

I dont know any hematologist but I know that in Scotland Besremi is banned. Less options.

J-fd profile image
J-fd

Hi ,I live caerphilly south wales but am under the royal Gwent in Newport haematology and I find my consultant good , I can give you his name if you like , hope your move goes well

Bulstrode5 profile image
Bulstrode5 in reply toJ-fd

Hi, thank you for your reply. Yes the name if your consultant would be useful. Sue

RCBr profile image
RCBr

Professor Steve Knapper is on the listprofiles.cardiff.ac.uk/staf...

He sounds like a great person to see from what I've just read from this link x

Bulstrode5 profile image
Bulstrode5 in reply toRCBr

Thank you, I think this is where I need to aim for. Sue x

J-fd profile image
J-fd in reply toRCBr

Ali Hassan Mahdi

Grizly profile image
Grizly

I’m seeing a haematologist at Prince Charles Hospital and she copies in Prof Steve Knapper and the Transplant team of any changes in my PMF

Bulstrode5 profile image
Bulstrode5 in reply toGrizly

Thank you for your reply, very helpful. Where is the Prince Charles hospital? Regards Sue

Grizly profile image
Grizly

Prince Charles Hospital is in Merthyr Tydfil. Cwm Taf Morgannwg University Health Board

Bulstrode5 profile image
Bulstrode5 in reply toGrizly

Many thanks sue x

gbeam profile image
gbeam

Hi, I am based in Tenby, but I have met professor Steve Knapper when I wanted a second opinion back in 2012. I found him extremely helpful. I have met him many times since at the MPN forums in Cardiff.

Bulstrode5 profile image
Bulstrode5 in reply togbeam

Thank you, that's reassuring. SUE

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