One year on!: There has been a discussion on here... - MPN Voice

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One year on!

Otterfield profile image
44 Replies

There has been a discussion on here today about how fantastically supportive this group is. I would like to add my voice to this on this, my first Re-Birthday! On 1st September 2022 I watched new healthy stem cells trickle into my veins giving me my life back. I am so grateful to everyone who cared for me and, of course, to my wonderful donor. And thank you to all of you who have supported me and shared your own stories. I'm not out of the woods yet - still having venesections for high ferritin and donor lymphocyte infusions - but I'm getting there. Best wishes to you all, Jennie

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Otterfield profile image
Otterfield
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44 Replies
hunter5582 profile image
hunter5582

Happy Re-birthday! 🎂🎁🎉

Wishing you a year of finding you way out of the woods.

AndyKay profile image
AndyKay in reply tohunter5582

Congratulations.

JediReject profile image
JediReject

Congratulations Jennie your first re-birthday is a true milestone , , , obviously the SCT route isn't without risk but the reward if successful is getting ones life back albeit perhaps not quite as it used be but once you get blood cancer your life changes from thereon anyway. The key thing is you get a second chance which many sadly don't have as an option.

By coincidence it's my 8th re-birthday on the 4th. And I count myself extremely fortunate because in those 8 years we have welcomed 4 more Grand-Children into our family and that makes all the GVHD and endless hospital stays / visits worth it.

Thanks for sharing your experiences honestly because I'm sure others will be grateful especially if it helps inform them and gives them confidence should they be considering treading the same path as we have.

Regards - Chris

Otterfield profile image
Otterfield in reply toJediReject

Then I wish you a happy Re-Birthday too! Your posts have been a great encouragement to me. I'm sorry you suffered so much with GVHD, but how wonderful that you are here to enjoy your grandchildren.

katiewalsh profile image
katiewalsh in reply toJediReject

Happy birthday to you to! Katie

Cja1956 profile image
Cja1956

That is such encouraging news, Jennie. Happy Re-Birthday! You are a warrior.

Beachmum22 profile image
Beachmum22

Happy Re Birthday! That deserves extra treats at the very least. Usually only the Queen gets two a year ( well king now actually) .

Huge congratulations on this great milestone, I appreciate you say you are not yet out of the woods but look how far you have come and celebrate!

Best wishes

Mostew profile image
Mostew

Adding my best wishes for you re birthday Jennie. It doesn't seem like a year ago to me . Wonder what your feeling of time has been , having gone through so much

Carolyn

Otterfield profile image
Otterfield in reply toMostew

The passage of time seemed different somehow. A bit like the limbo of lockdown I suppose.

gset profile image
gset

congratulations on your milestone, you are an inspiration to us all and give us hope too.

socrates_8 profile image
socrates_8

Happyh B'Day Jennie... 8-)

Cool that is wonderful news to learn that you are doing so well... Warwick, one of MATES members who is just over Two years in is still having a few battles too... But he is looking and feeling much more like his old-self...

Warwick is actually in the UK right now participating in the World Cup for "Walk-Up" Soccer

I was hoping to Post a few pics however, they have not materialised as yet...

So great to see Warwick out there living his life all the same...

Best wishes Jennie... :-)

Steve

(Sydney)

Otterfield profile image
Otterfield in reply tosocrates_8

I'm glad to hear about Warwick. It's great to hear that he can travel and do sporty stuff!

Oscarsboy profile image
Oscarsboy

So Many Congratulations to you. Its wonderful to read how far you have come and what a great example and encouragement you have been. Enjoy your special extra birthday. X

JAB6 profile image
JAB6

Best always on your re birthday and many years to come!

Wyebird profile image
Wyebird

Brilliant news, will the venesections diminish or stop in time?

Otterfield profile image
Otterfield in reply toWyebird

Yes, when my ferritin gets down to the right level.

Wyebird profile image
Wyebird in reply toOtterfield

Oh how fab. I do hope all continues to go well for you

beetle profile image
beetle

happy re birthday! I’m sure your experiences will give hope to others following on. I hope the niggles can be sorted out before too long. Very best wishes, Jan

champ30 profile image
champ30

Happy Birthday..... wonderful you're doing so well....it takes courage to go through the Stem cell route....just Brilliant.🤗Lynn

lizzziep profile image
lizzziep

Happy Re-birthday! Hope all continues to go well for you! ❤️

Cassandra61 profile image
Cassandra61

So glad you are well and moving forward, thanks for letting us know how you are doing. Happy Rebirthday and many more returns.

SRH55 profile image
SRH55

Congratulations to you, thanks for sharing your story. Sending best wishes.

Shirley

MFBMT2011 profile image
MFBMT2011

Well done.

Chris H

Bullace profile image
Bullace

Thanks so much for sharing your experience. It has been inspirational and shown a lot of courage. I do hope you continue to do well and that the venesections and infusions are soon no longer necessary. All good wishes for the future!

ainslie profile image
ainslie

Congratulations, and long may your success continue

DiveGoddess profile image
DiveGoddess

Jeannie,

Thank you for sharing 🤗 It is good to hear your healing story and glad you are experiencing this outcome. Glad also you are here with us!

Meatloaf9 profile image
Meatloaf9

Congrats, and many many more. Best

georgevanier profile image
georgevanier

Thanks for sharing ,great to hear you are doing so well Congrats, Best wishes and Blessings

GardNerd profile image
GardNerd

Congratulations on this milestone! May the journey of life and health continue onward and upward!

azaelea profile image
azaelea

Happy,happy Re-Birthday Jennie and thanks for sharing your experience with us. Wonderful to hear of your progress and best wishes for getting out of the woods very soon. Best wishes, Fran.xx🙏🙏

Sunshine1932 profile image
Sunshine1932

Sending lots of health and happiness for the year to come and beyond 💓

katiewalsh profile image
katiewalsh

congrats on your Re-birthday! What a milestone. You were so brave & strong to have a SCT & here you are able to celebrate. I love your positive outlook. Katie

MaggieSylvie profile image
MaggieSylvie

Congratulations! May your health continue to improve!😊

Solyesh profile image
Solyesh

Happy Re-Birthday!

Bluetop profile image
Bluetop

Well congratulations. You made a brave decision but so pleased you are getting there. What a journey! You are an inspiration.

bruddery profile image
bruddery

Congratulations what an achievement I have been following your posts with interest. Enjoy your new life!! Janice

mhos61 profile image
mhos61

Happy Re-birthday Jennie. Hope you had a great day. X

Ekkles profile image
Ekkles

Happy Re-Birthday Jennie. Great to hear all going to plan for you and I want to thank you for updates regarding your experience of SCT..... it is so helpful for those thinking of embarking down the SCT route. Wishing you another year of continued healing and health. x

krotsida profile image
krotsida

Wishing you a day filled with happiness and a year filled with joy. Happy birthday Jennie!🥂

Dodders profile image
Dodders

Happy re-birthday, and wishing you many happy returns of the day!

Mazcd profile image
MazcdPartnerMPNVoice

congratulations Jennie, so happy for you, Maz x x

ETinNYC profile image
ETinNYC

How wonderful to hear you're doing well one year on from transplant, albeit with a few (expected) bumps along the way. I admire your positive attitude and your selflessness in keeping us abreast of your journey. You're an inspiration!

Wishing you continued good/improving health. Be well and keep being kind to yourself. Xx

MAP44 profile image
MAP44

Ahhhh an amazing celebration for a special lady! 🌸🌺🌼

Congratulations to you and your family❤️🎉.

The rest of your MPN family enjoy a fighters story with a happy ending. 🍾🥂🎂

KC63 profile image
KC63

Congratulations Jennie , can't believe a year already! Best wishes xxx

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