My MPN specialist confirmed that the committee which makes the annual decisions on which new medicines/treatments/technologies to include in the public healthcare basket is considering the inclusion of the expanded gene panel as standard of care for MPNs.
This would mean that all MPN or suspected MPN patients would have the full gene panel included as standard of care at no cost. This would also apply for tracking progress/response to IFNs. My doctor says they had tried in the past but were not successful but feel much more positive this go around (probably helps that the new head of the committee is the director of the hematology division at one of the best hospitals in the country and dean of one of the best medical schools).
We should know early in 2023 if the gene panel is included in the basket.
Happy Holidays to all and a healthy and happy 2023!