Posts - MPN Voice | HealthUnlocked

MPN Voice

10,647 members • 14,730 posts

All posts for October 2021

mouth ulcers

As I have been searching ages and cannot find the answer, I wonder if someone can help. I have a friend suffering badly with mouth ulcers and cannot find the...

As I have been searching ages and cannot find the answer, I wonder if someone ca...

Oscarsboy

•3 years ago

21 Replies

3rd vaccine

Just an update from earlier this week, re 3rd vaccine dose. I had the telephone consultation this afternoon with Practice Nurse who assured me that the dose...

Just an update from earlier this week, re 3rd vaccine dose. I had the telephone...

Oscarsboy

•3 years ago

6 Replies

3rd vaccine done...after jumping through hoops

Well now. That was a bit of a palaver. Sent MPN and Blood Cancer letters to GP, GP bounced me to the local NHS Trust in charge of vaccines. A lovely lady...

Well now. That was a bit of a palaver. Sent MPN and Blood Cancer letters to GP,...

Mpn71

•3 years ago

2 Replies

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Hallelujah!

After going through the process of taking all the letters to my GP practice as so many of us have I noticed that our medical practice had posted an invitation...

After going through the process of taking all the letters to my GP practice as s...

beetle

•3 years ago

22 Replies

Booked in for “3rd” Vaccine

After my communication with the CCG things have now moved on. This morning I got a very friendly call back from my GPs surgery to book me in with the carefully...

After my communication with the CCG things have now moved on. This morning I got...

mhos61

•3 years ago

6 Replies

3rd vaccine refusal

Good morning everyone. I just thought I would share another variation on the experience of seeking a third vaccine. A week after enquiring, I have had a...

Good morning everyone. I just thought I would share another variation on the exp...

Mymble

•3 years ago

2 Replies

Could covid trigger pruritus?

Good morning. I have PV and plod along with aspirin and venesections. Have just had Covid (flulike symptoms) but since then have begun to experience severe...

Good morning. I have PV and plod along with aspirin and venesections. Have just ...

SueBas

•3 years ago

3 Replies

3rd Covid Vaccine

So I got my letter from Haematology today about the 3rd primary covid vaccine. Moment of excitement, then read through frantically trying to find MPNs or PV on...

So I got my letter from Haematology today about the 3rd primary covid vaccine. M...

MWxxxx

•3 years ago

27 Replies

Flu shot while taking Pegasus interferon?

Is it OK to have flu shot while taking Pegasus? I had 2 covid shot of Pfizer. Thanks

Is it OK to have flu shot while taking Pegasus? I had 2 covid shot of Pfizer. T...

Sam2022

•3 years ago

11 Replies

Peg interferon (cold) transportable storage

Hi Please could anyone advise me on the most efficient way to transport your peg interferon while travelling,to keep it cold. Thankyou

Hi Please could anyone advise me on the most efficient way to transport your pe...

Bobadog

•3 years ago

5 Replies

Response to Vaccine Query

I have followed the recent guidance from MPN Voice and Blood Cancer UK advise letters with regards to securing a “Third Primary Dose” Vaccine by further...

I have followed the recent guidance from MPN Voice and Blood Cancer UK advise le...

mhos61

•3 years ago

34 Replies

Pfizer batch card query. Thank you!

I’d like to thank all of you who kindly replied to my query. As everyone throughout England seems to have been given their booster batch number I phoned the...

I’d like to thank all of you who kindly replied to my query. As everyone through...

azaelea

•3 years ago

1 Reply

High blood calcium levels

Hi MPNers, Recent bloods revealed high calcium level-Hypercalcemia ?? Haematologist is requesting further bloods anyone else have same issue ? Have ET and PV...

Hi MPNers, Recent bloods revealed high calcium level-Hypercalcemia ?? Haematolog...

NedKel65

•3 years ago

13 Replies

Looking for some advice

I’ve been lurking for the last 6 months and waiting til I had a full diagnosis before I posted, but - 10 months on, I am still trying to get a confirmed...

I’ve been lurking for the last 6 months and waiting til I had a full diagnosis b...

Megabyte

•3 years ago

19 Replies

Small movable lump after IV

Hi everyone, I broke my wrist recently and had an IV in the back of my wrist on the other hand. At the time when the iv was used for pain meds or rehydration...

Hi everyone, I broke my wrist recently and had an IV in the back of my wrist on ...

EmeraldA

•3 years ago

1 Reply

At last

Attended my appointment today and have started on Hydroxycarbamide 500mg to take 1 per day for 4 wks then go back to see if they need to up dosage or lower...

Attended my appointment today and have started on Hydroxycarbamide 500mg to take...

indy22

•3 years ago

11 Replies

Booster Vac done yesterday.

I made sure it was Pfizer as Blood Cancer UK ‘s advice is that Pfizer is the full dose anyway whereas Moderna is only a booster with a half dose. I also asked...

I made sure it was Pfizer as Blood Cancer UK ‘s advice is that Pfizer is the ful...

azaelea

•3 years ago

8 Replies

Turmeric and Ruxolitinib

I have been taking Turmeric Shots for sometime and found them a tremendous benefit in easing the inflammation for my OA. However in March I started taking...

I have been taking Turmeric Shots for sometime and found them a tremendous benef...

Heather270240

•3 years ago

37 Replies

Splenomegaly after taking Pegasys

I cannot find answers to so many things related to MPNs online. I really appreciate having this community. Just a quick question for any of you Pegasys...

I cannot find answers to so many things related to MPNs online. I really appre...

Emmyroos

•3 years ago

9 Replies

Covid and flu jab together

Anyone one had experience of flu jab and 3rd covid at same time?

Linnie5

•3 years ago

3 Replies

Hard work getting vaccine

Following the advice last week to get a third vaccine was wondering if anybody else is encountering problems. I have been turned away from my surgery, even...

Following the advice last week to get a third vaccine was wondering if anybody e...

JP1952

•3 years ago

16 Replies

Best immunity

:those who’ve had Covid and not the vaccine do have a degree of immunity, a degree of immunity which is probably better than those who’ve only just had the...

:those who’ve had Covid and not the vaccine do have a degree of immunity, a degr...

Cokopops

•3 years ago

13 Replies

Good news!!

I can get links again . Suddenly started working

Mostew

•3 years ago

3 Replies

What do we know about future treatments of AML ? Is there anything hopeful in the horizon?

Is there any hope for cure or breakthrough treatments?

Aneliv9

•3 years ago

5 Replies

Thanks again

Just to thank all the team at MPN Voice again for the excellent letter for the third primary dose - I used it this morning at our city vaccination hub and it...

Just to thank all the team at MPN Voice again for the excellent letter for the t...

Helpatlast

•3 years ago

9 Replies

Help for weight gain?

I'm on a hydroxycarbamide regime for ET (now some 9 months since starting on this) For the first 2-3 months I was losing weight, but since then I have gained...

I'm on a hydroxycarbamide regime for ET (now some 9 months since starting on th...

Hidden

•3 years ago

18 Replies

Just had my 3rd Covid vaccination. Do I still receive a booster after six months? I’m assuming so, otherwise this one WOULD be the booster?

Covid 3rd jab and booster

Garstongal

•3 years ago

19 Replies

Useful Webinar

A Leukaemia Care webinar last week 'Covid-19 and Leukaemia: what more do we know' is now available on YouTube and worth watching. 'This webinar explored the...

A Leukaemia Care webinar last week 'Covid-19 and Leukaemia: what more do we know...

clematis26

•3 years ago

Be the first to reply

Anyone know who is delivering the third primary Covid vaccine?

I took the letter from MPN voice to my surgery yesterday to be told that they are only doing boosters. I have left it with a letter for my GP to see what...

I took the letter from MPN voice to my surgery yesterday to be told that they ar...

gset

•3 years ago

20 Replies

3rd dose Scotland Pfizer or Moderna

I have a letter from NHS Scotland inviting me for third dose, having read all the info on here so far I am a bit confused. When I saw the nurse at GP,s the...

I have a letter from NHS Scotland inviting me for third dose, having read all th...

ainslie

•3 years ago

2 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for October 2021

mouth ulcers

3rd vaccine

3rd vaccine done...after jumping through hoops

Hallelujah!

Booked in for “3rd” Vaccine

3rd vaccine refusal

Could covid trigger pruritus?

3rd Covid Vaccine

Flu shot while taking Pegasus interferon?

Peg interferon (cold) transportable storage

Response to Vaccine Query

Pfizer batch card query. Thank you!

High blood calcium levels

Looking for some advice

Small movable lump after IV

At last

Booster Vac done yesterday.

Turmeric and Ruxolitinib

Splenomegaly after taking Pegasys

Covid and flu jab together

Hard work getting vaccine

Best immunity

Good news!!

What do we know about future treatments of AML ? Is there anything hopeful in the horizon?

Thanks again

Help for weight gain?

Just had my 3rd Covid vaccination. Do I still receive a booster after six months? I’m assuming so, otherwise this one WOULD be the booster?

Useful Webinar

Anyone know who is delivering the third primary Covid vaccine?

3rd dose Scotland Pfizer or Moderna

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