Posts - MPN Voice | HealthUnlocked

MPN Voice

10,512 members • 14,508 posts

All posts for February 2021

Vaccine

Good evening hope everyone doing well today Last Monday I was so happy to get my Oxford vaccine and in only a week I feel a little worried about it with all...

Good evening hope everyone doing well today Last Monday I was so happy to get m...

Poppy6060

•3 years ago

24 Replies

Gout and MPN

I have PV had ET which progressed to PV. I was doing ok and I do see an MPN Specialist. About a week ago my foot was red and swollen right across where all...

I have PV had ET which progressed to PV. I was doing ok and I do see an MPN Spe...

mickey64

•3 years ago

14 Replies

Vaccination

I have gone on to the nhs appt booking but it tells me it's I'm not eligible. What can I do? I have ET and heart disease.

I have gone on to the nhs appt booking but it tells me it's I'm not eligible. Wh...

netty64

•3 years ago

17 Replies

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WARWICK's ASCT Journey Begins Today...

Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey,...

Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the su...

socrates_8

•3 years ago

32 Replies

Life after COVID

Hello everyone. My name is James and I’m British. I went to Dubai for Christmas and I caught the virus on the 9th January 2021 and I stayed in a hotel to...

Hello everyone. My name is James and I’m British. I went to Dubai for Christmas ...

2021-

•3 years ago

26 Replies

ET Patients: Pain, Covid, Hydrea and NAC Supplements

I haven’t found much information about the symptoms of ET other than dizziness, headache, numbness and tingling in hands and feet, fatigue. I’m sure I missed...

I haven’t found much information about the symptoms of ET other than dizziness, ...

Hemaeohisto13

•3 years ago

7 Replies

Thalassemia beta trait and elevated platelets

I was referred to a haematologist last year as the blood test results from my annual health screen came back with some abnormal results. I have thalassemia...

I was referred to a haematologist last year as the blood test results from my an...

nutter1234

•3 years ago

8 Replies

Sounds Promising Covid Treatment

This is being reported in several papers May turn out differently but sounds promising ?...

This is being reported in several papers May turn out differently but sounds pr...

Dovme

•3 years ago

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Back pain

Hi, I am currently waiting on blood test results to see if I have ET. I'm 42 and have had consistently raised platelets since 2017 raining from 450 to 600. I...

Hi, I am currently waiting on blood test results to see if I have ET. I'm 42 and...

106776

•3 years ago

10 Replies

Covid vaccine

Just had my Covid vaccine, arranged online without a letter, no one asked for it. If you have not had a letter, try booking yourself instead of waiting to be...

Just had my Covid vaccine, arranged online without a letter, no one asked for it...

Hydrox

•3 years ago

15 Replies

ET mental impact/symptoms

Hello to all. I am a 49y.o. male, diagnosed with ET (JAK2+) about a month ago (January 2021). Platellets have been relatively stable over 450k (460k-503k) for...

Hello to all. I am a 49y.o. male, diagnosed with ET (JAK2+) about a month ago (J...

Hidden

•3 years ago

30 Replies

Diet and Risk of Myeloproliferative Neoplasms in Older Individuals from the NIH-AARP Cohort

« Conclusions: The intake of fat and protein did not appear to influence PV risk—neither did meat or vegetable consumption. None of the dietary factors studied...

« Conclusions: The intake of fat and protein did not appear to influence PV risk...

Manouche

•3 years ago

1 Reply

It will happen

The vaccines are coming. My Partner was only notified on Tuesday to go for his today (Friday) - so it does suddenly arrive. They are still working on...

The vaccines are coming. My Partner was only notified on Tuesday to go for his t...

PrePMFpartner

•3 years ago

3 Replies

NEXT STEP IN NEXT GENERATION SEQUENCING (NGS)

Post by MPN-MATE Admin » Fri Feb 05, 2021 11:47 am Morning all... :D Recently came across this article that makes some very interesting observations about...

Post by MPN-MATE Admin » Fri Feb 05, 2021 11:47 am Morning all... :D Recentl...

socrates_8

•3 years ago

4 Replies

Start interferon or "watch and wait"?

First, thank you to all who have reached out to me this last week since I joined the forum. Your kindness has truly helped me come to terms with all this. I...

First, thank you to all who have reached out to me this last week since I joined...

cmc_ufl

•3 years ago

12 Replies

Vaccine and Scottish shielders

There seems to a problem in the east of Scotland or at least in Edinburgh with vaccinating those on the shielding list. As a matter of interest is this just a...

There seems to a problem in the east of Scotland or at least in Edinburgh with v...

DJK12

•3 years ago

14 Replies

Video of the MPN Voice ‘Virtual’ Patients’ Forum – London Held on Tuesday 2nd February 2021

The video of the forum is now available to view on the MPN Voice YouTube channel. https://www.youtube.com/channel/UC-S_Ic321-snfvnco9ypyUg...

The video of the forum is now available to view on the MPN Voice YouTube channel...

Mazcd

Partner•3 years ago

6 Replies

Frustrated

Hi all. I am really pleased that so many of you are being vaccinated but please spare a thought for those of us who are in health authorities that are ignoring...

Hi all. I am really pleased that so many of you are being vaccinated but please ...

Jlah

•3 years ago

26 Replies

Hydroxy questions

I'm 64 , been diagnosed for 3 years now, PV and Jak2, been on venisection and mini aspirin. Have been feeling well most of time, plenty of excercise, walking...

I'm 64 , been diagnosed for 3 years now, PV and Jak2, been on venisection and m...

liverliver

•3 years ago

13 Replies

Hydroxyurea or Busulfan

Hello MPN community I was diagnosed with PV in 2020. I am JAK2+ and am currently being treated with Phlebotomies as needed and baby aspirin . I am thinking...

Hello MPN community I was diagnosed with PV in 2020. I am JAK2+ and am currently...

Ridenez

•3 years ago

17 Replies

Glad I don’t have to keep wondering!!

Had jab . No need to ask my self if I should or not anymore . Has anyone one else been given a leaflet AFTER jab which clearly says it should be given BEFORE...

Had jab . No need to ask my self if I should or not anymore . Has anyone one el...

Mostew

•3 years ago

38 Replies

Vaccine

I had a text yesterday asking me to book my covid vaccination, I had it this afternoon, only a couple of miles from home. While I was there I asked if my...

I had a text yesterday asking me to book my covid vaccination, I had it this aft...

lizzziep

•3 years ago

11 Replies

Oxford Vaccine.

I had my Oxford Vaccine yesterday here in Guernsey, I have PV as such the, nurse told me as I am on already on an autoimmune med the vaccine might not be quite...

I had my Oxford Vaccine yesterday here in Guernsey, I have PV as such the, nurse...

bordeauxgirl

•3 years ago

3 Replies

Pfizer vaccine

I have read a few concerns on here about not having this vaccine if you have an allergy to penicillin of which I am I had this vaccine on Monday with no...

I have read a few concerns on here about not having this vaccine if you have an ...

Pippa63

•3 years ago

8 Replies

HU versus Interferon - choices, timing of switch and other related decisions

Hello, I am jak 2 positive calr negative person who has polycythemia Vera as well as GCA. Was diagnosed 2 years ago when I had abnormally high platelet count...

Hello, I am jak 2 positive calr negative person who has polycythemia Vera as wel...

Iwillwin123

•3 years ago

38 Replies

MPN Virtual Patients’ Forum

I just wanted to say a huge thank-you to everyone involved in yesterday’s patient forum. The expert & patient talks were very informative & I found it helpful...

I just wanted to say a huge thank-you to everyone involved in yesterday’s patien...

RomaJG

•3 years ago

6 Replies

Grand Round | 16th Oct | 12:00pm | ‘State of progress in development of COVID-19 vaccines’

Post by MPN-MATE Admin » Wed Feb 03, 2021 8:51 pm Evening all... :D Trusting that you are all doing well wherever you may be...? This video is really...

Post by MPN-MATE Admin » Wed Feb 03, 2021 8:51 pm Evening all... :D Trusting...

socrates_8

•3 years ago

Be the first to reply

Newly diagnosed with myelofibrosis

Hallo. I am newly diagnosed with myelofibrosis. I was called to be told a week ago. I’ve been in and out of shock since and now so frightened I can’t sleep. I...

Hallo. I am newly diagnosed with myelofibrosis. I was called to be told a week a...

LuluCosson

•3 years ago

38 Replies

Histamine intolerant? Seek advice as to whether or not you should have the vaccine.

I have a condition known as histamine intolerance as well as polycythemia, and because of histamine intolerance NOT PV , I have just had an email from my gp...

I have a condition known as histamine intolerance as well as polycythemia, and b...

Loubprv

Volunteer•3 years ago

6 Replies

Good news on Vitamin D and COVID-19 vaccine

I just wanted to report that on Friday I received the Pfizer vaccine at Guy’s Hospital and today I received 120 vitamin D tablets via the post (those shielding...

I just wanted to report that on Friday I received the Pfizer vaccine at Guy’s Ho...

Susana7

•3 years ago

31 Replies

Posts - MPN Voice | HealthUnlocked

MPN Voice

All posts for February 2021

Vaccine

Gout and MPN

Vaccination

WARWICK's ASCT Journey Begins Today...

Life after COVID

ET Patients: Pain, Covid, Hydrea and NAC Supplements

Thalassemia beta trait and elevated platelets

Sounds Promising Covid Treatment

Back pain

Covid vaccine

ET mental impact/symptoms

Diet and Risk of Myeloproliferative Neoplasms in Older Individuals from the NIH-AARP Cohort

It will happen

NEXT STEP IN NEXT GENERATION SEQUENCING (NGS)

Start interferon or "watch and wait"?

Vaccine and Scottish shielders

Video of the MPN Voice ‘Virtual’ Patients’ Forum – London Held on Tuesday 2nd February 2021

Frustrated

Hydroxy questions

Hydroxyurea or Busulfan

Glad I don’t have to keep wondering!!

Vaccine

Oxford Vaccine.

Pfizer vaccine

HU versus Interferon - choices, timing of switch and other related decisions

MPN Virtual Patients’ Forum

Grand Round | 16th Oct | 12:00pm | ‘State of progress in development of COVID-19 vaccines’

Newly diagnosed with myelofibrosis

Histamine intolerant? Seek advice as to whether or not you should have the vaccine.

Good news on Vitamin D and COVID-19 vaccine

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