Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for February 2017

Nutrient Study Trial in US

Hey all my MPN friends... A group of MPN people in Australia recently emailed me the following information in relation to a study that aims to control MPNs...

Hey all my MPN friends... A group of MPN people in Australia recently emailed me...

•7 years ago

Blood platelets still too high...?

Hey everyone... :) I hope all are happy and mostly well with their various MPNs etc... Just a quick question for anyone who might be able to shed some light....

Hey everyone... :) I hope all are happy and mostly well with their various MPNs...

•7 years ago

Fatigue

This has recently become a problem for me. I have had PV for seven years now and am 74 so feel lucky to be alive, and enjoying life. I walk regularly but am...

This has recently become a problem for me. I have had PV for seven years now and...

•7 years ago

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polycythemia vera ( cinfirmed )

Hi every one Im fady ...Thanks very much for your words and support about suspected p.v,Now investigations are completed and im definitely diagnosed...

Hi every one Im fady ...Thanks very much for your words and support about suspec...

•7 years ago

Hydroxy and loss of taste

Hi everyone, I was wondering if anybody has had a sudden problem of not being able to taste food. All food , (even home made spicy curries), taste of nothing....

Hi everyone, I was wondering if anybody has had a sudden problem of not being ab...

•7 years ago

Recently diagnosed JAK2 negative PRV

Hi..I was diagnosed in December with jak2 negative PRV and showed no molecular markers on the bone marrow biopsy/aspiration. Is there anyone else like me? I'm...

Hi..I was diagnosed in December with jak2 negative PRV and showed no molecular m...

•7 years ago

Beginning to feel better!

I have always had very bad health all my sixty years, not been able to do a lot of various things over the years, all those people when I was small bouncing...

I have always had very bad health all my sixty years, not been able to do a lot ...

•7 years ago

bruising.

Hi all , i seem to be getting bruises appear ,which i havent had in a while now ,and just wonder whether i should be concerned? Im not due to see consultant...

Hi all , i seem to be getting bruises appear ,which i havent had in a while now ...

•7 years ago

Pressure and pain on left side

For fifteen years I have had pain around left shoulder blade. It now has spread out and my whole left side hurts. I have been on opiates for pain. Now my...

For fifteen years I have had pain around left shoulder blade. It now has spread ...

•7 years ago

Commencing anagrelide

Hi I was diagnosed with polycythemia jak2 + in November 2016 and up until now have been treated with warfarin , clopidergrol and weekly venesections ....

Hi I was diagnosed with polycythemia jak2 + in November 2016 and up until now ...

Dianne-Guisborough

•7 years ago

Lower platelets with changes in diet

Hi I've recently been diagnosed with PV and have 7 venesections which has brought my PCV down to 44 from 61 when I was first seen. However my platlets continue...

Hi I've recently been diagnosed with PV and have 7 venesections which has brough...

•7 years ago

Travel to Vietnam

Hi I wonder could anyone help with advice about injections for travel to Vietnam. I am going at the end of next week and suddenly thought about injections...

Hi I wonder could anyone help with advice about injections for travel to Vietnam...

•7 years ago

Low noise in ears

Hi does anyone experience a low sort of hum in the ears, in the same sort of rythm of your heartbeat? I have ET JAk2+ and in aspirin and hydroxy daily. It is...

Hi does anyone experience a low sort of hum in the ears, in the same sort of ryt...

•7 years ago

Rivaroxoban or aspirin?

Hi. I had unprovoked pulmonary embolisms 3 years ago, and was put on a recently NICE approved anticoagulant Rivaroxaban . Much better than warfarin or aspirin...

Hi. I had unprovoked pulmonary embolisms 3 years ago, and was put on a recently ...

Rachelthepotter

•7 years ago

Flying

Hi all, my stepdaughter is getting married next year in Mexico . My concern is obviously the length of the flight to the Pacific side which is 11 hours. I'm on...

Hi all, my stepdaughter is getting married next year in Mexico . My concern is o...

•7 years ago

Huge spleen with myelofibrosis

My partner is considered low risk so is on watch and wait. His spleen isn't pretty big though, 22cm and he is complaining of increased tiredness. From reading...

My partner is considered low risk so is on watch and wait. His spleen isn't pre...

•7 years ago

Treatment in Wales for Primary Myelofibrosis

Has anyone here been treated at Glangwili Hospital in Carmarthenshire

Has anyone here been treated at Glangwili Hospital in Carmarthenshire

•7 years ago

Dental Fillings and Hydroxycarbamide

I've just started on Hydroxy and went to the dentist for a filling. When I told him what I was taking he didn't want to give me a numbing injection as he...

I've just started on Hydroxy and went to the dentist for a filling. When I told ...

•7 years ago

Identifying Red/White Blood Cells details

I've seen mention of people's red and white blood cell counts so I looked at my blood printout. Nothing so helpful as the words 'red' or 'white' of course. Can...

I've seen mention of people's red and white blood cell counts so I looked at my ...

•7 years ago

Newly Diagnosed - ET

I am a 35 year old female and have recently been diagnosed with ET, Jak 2 positive. Although I am on clopidogrel I am speaking to a new haematologist on...

I am a 35 year old female and have recently been diagnosed with ET, Jak 2 positi...

•7 years ago

Pv?

I'm being referred for pv following a previous hct of 65. I picked these latest results up this afternoon. I'm confused as to how it's gone down to 49 (I...

I'm being referred for pv following a previous hct of 65. I picked these latest...

•7 years ago

Sorry to pester you all again

Hello, First I would like to wish everyone well and I hope the dark wet mornings are not getting everyone down :) I really feel I am going to come across as...

Hello, First I would like to wish everyone well and I hope the dark wet morning...

•7 years ago

Hydrea and Erythema Nodosum

Hi all, I've been wanting to reply to all the wonderful folks that posted on my Chemicals/ET post. A reaction to the Hydrea I have been taking for 3 weeks for...

Hi all, I've been wanting to reply to all the wonderful folks that posted on my ...

•7 years ago

TOOTH EXTRACTIONS

Hello all u lovely people, Do most of u have tooth extractions at your dentist or go to a hospital? I have E.T. The dentist is wanting me to have a...

Hello all u lovely people, Do most of u have tooth extractions at your dentist ...

•7 years ago

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