Hydrea and Erythema Nodosum: Hi all, I've been... - MPN Voice

MPN Voice

10,437 members14,387 posts

Hydrea and Erythema Nodosum

Lab-Rat profile image
3 Replies

Hi all, I've been wanting to reply to all the wonderful folks that posted on my Chemicals/ET post. A reaction to the Hydrea I have been taking for 3 weeks for my JAK2 ET put a spanner in the works. My legs erupted in large red painful hot lumps. Walking was difficult. I was diagnosed with Erythema Nodosum and was told to stop! taking Hydrea. I am seeing the oncologist next week re new plan of action. Anyone else experienced this Hydrea side effect? I wish you all well. Yvette from South Africa.

Written by
Lab-Rat profile image
Lab-Rat
To view profiles and participate in discussions please or .
Read more about...
3 Replies
socrates_8 profile image
socrates_8

Hey Yvette... :)

Yes, I also was previously experiencing very unpleasant burning sensations and mouth ulcers. But the most disturbing aspect for me, (at that time), was the mental fog that lifted immediately upon cessation.

Best wishes with your search for something better Yvette...

Steve

(Sydney)

Lab-Rat profile image
Lab-Rat in reply to socrates_8

Hi Steve from Sydney

Yes I feel a totally different person now I am off Hydrea, brain fog gone, energy levels up, could put in more than 8 hours at work. I am worried what the dr is going to give as a replacement for Hydrea. Best to you.

Trli profile image
Trli

I also got large red welts on my legs that hurt. Oncologist did not know what they were but said I was allergic to the hydroxyurea and took me off.

You may also like...

Hydrea and a certain smell

been taking aspirin since diagnosis in November 2014 since November 2016 have been taking Hydrea....

Long Term Hydrea patients?

long term Hydrea PV/ET patients out there? I'm 74. I was diagnosed about 7 years ago with Jak2 ET....

Hydrea

so I feel Hydrea has helped me even though I hate the thought of taking this poison hope all are ok...

Hydrea

70' s and was wondering if anyone else was taking Hydrea every other day with a daily low dose...

Hydrea!

I have a quick question, as Hydrea decreases platelets number, does this encourage bone marrow to...