I was diagnosed with polycythemia jak2 + in November 2016 and up until now have been treated with warfarin , clopidergrol and weekly venesections .
Today my haematologist has commenced me on anagrelide 500mcgs twice per day as my platelets are between 850,000 and 1.03 million most of the time.
For me , because of a history of melanoma my haematologist has said hydroxyurea is contraindicated as is interferon as I had an unprovoked PE last year ( she thinks the PE was probs due to undiagnosed PV which was diagnosed as many are, following a routine blood test) .
I sound a walking disaster area but honestly I'm not - I'm very positive, very active but a bit of a complicated history as a lot of us are on the forum - I'm just a control freak and like to know all the bits and pieces about any new treatment I start .
Any advice regarding taking anagrelide would be really greatly appreciated.
Thank you for taking the time to read this and best wishes to all on the forum
Love Dianne xxxx