First I would like to wish everyone well and I hope the dark wet mornings are not getting everyone down
I really feel I am going to come across as a hypochondriac which is the last thing I want to do but I have been struggling terribly following confirmation of Polycythemia.
I am in the process of having regular Venesections and having my third one in six weeks tomorrow.
I had a bone marrow biopsy back in August 2016 but it failed to collect Trephine and I was told therefore was unlikely to be helpful in accessing the possibility of primary PV.
I am finding it very difficult to accept this due to how unwell I have been feeling and feel that I have exhausted all avenues.
My doctor is now only looking to sign me of work sick and can't really do anything else for me at this stage.
I do believe that everything is being done that can be done but I have a real gut feeling that the doctors are wrong and there is something else going on.
Does anyone happen to know if the BMB did not collect Trephine, would they have been able to identify if something else was wrong??
I seem to continually feel fatigued and go to bed at 9pm and can easily sleep till 1pm the following day and am ready for bed again by 9, have what seems to be a lump on the right side of my neck which doesn't hurt but I feel it every time I swallow and had this for almost a year.
I have a number of other things going on including ringing in the ears and extreme confusion (this worries me)
and it feels like I have had an electric shock as i'm tingling in the hands and lower legs all the time...in other words I'm having a bad day