ID bracelet

I'm thinking of buying my partner an ID bracelet - so contact details is ok but what about the name of the condition is it better to put MPN or ET or just put the full name of ET? Or something else?

Thanks x

[tornado]

I think you should put MPN.

[catkinspolymer]

this is what i have written on mine came from my haematologist

"Essential Thrombocythaemia (Platlet Disorder) Risk of bleeding or Thrombosis"

hope this helps PS I have had ET now for 30 years and about to celibrate my 70th birthday boxing day

All the best to everybody for Christmas and New year

Town Crier

[Sherry2 in reply to catkinspolymer]

Happy Birthday on boxing day

[AndyT]

I think the full name of the condition is best - mine says 'Essential Thrombocythaemia - control bleeding in the event of accident' as I'm on aspirin and even the smallest cut bleeds profusely..! Also have my blood group on there.

[lizzziep in reply to AndyT]

Happy Birthday for Boxing Day, hearing you have had ET for 30 years gives hope and inspiration to those of us who haven't had it quite as long!!

[lizzziep in reply to AndyT]

Good idea!

[Eadaoin]

I have a Medic Alert bracelet and would not be without it (I also have other conditions). I have the words Thrombocythemia Myelodysplasia engraved along with the rest of my conditions. Medic Alert also keep an updated record of all your medication, consultants, emergency contacts etc on file with a phone number engraved for contacting them 24 hours from anywhere in the world. I would not be without the support. It costs less than £30 a year to become a member and I would strongly recommend it. Google it and you will get all the information. Hope this helps.

[Hidden]

That helps enormously. Thank you to everyone who has replied. Full name and risks, and ice (in case of emergency) number with up to date details. I will look at medi alert too. Nice to know you're ok after this number of years too!

happy Christmas All x

[beetle]

theidbandco.com is another place to look

Happy Christmas all

[Borage]

Hello Nic,

Happy Christmas.

I keep a small laminated card with my name and date of birth, contact numbers, GP details, consultant details, medical conditions, medication and investigations. I will put a few words about ET and its clotting/ bleeding risks on the back next time I update it.

My husband also has a copy in his wallet. It is small enough to keep in my coat pocket and I stick a copy in my diary and one in my prescribed medicines box.

It saves a lot of questions in A&E when you don't feel well enough to concentrate. The doctor usually takes a photocopy for the hospital notes, which reduces errors.

It costs only pennies to make and it is easy to save and update the information, change the date, and print new copies.

Doctors may not have time in our hard pressed NHS to phone a helpline and wait for connections and details.

Best wishes,

Borage

[Eadaoin]

As well as an ID bracelet (or chain and pendant) with your conditions engraved on it Medic Alert also keeps a file containing the information you have given them during a 'phone conversation with one of their nurses. You also get a small laminated card for your purse/wallet with Medical/ Conditions/ Contacts/GP/ hospital ID number etc. A relative or friend can 'phone them for file information if it is needed and they have your membership number - it does not have to be a hard pressed doctor. Medic Alert is geared to receiving urgent phone calls so it is unlikely that there would be a "wait". I live alone and generally end up in A&E on my own. I have a Pacemaker, Warfarin, ET and MDS and it is very important that staff know about all of these very quickly. This scheme helps to ensure this happens.