Is there anyone out there who has been on Ruxolitinib for some time, and who has PV?i have been taking hydroxicarbamide for 5 years, it suits me well and the PV is well controlled combined with regular venesections.
I have problems with pruritis ( although I can cope it would be nice to be able to shower and bathe again, and get dressed without the dreaded prickle and itch!)
I have the chance of possibly going on the Ruxolitinib trial, but am wondering of anyone out there has noticed/ suffered side effects.
I really don't want to risk moving from hydroxicarbamide ( no side effects for me) only to find I suffer side effects with Ruxolitinib - just to cure pruritis.......
Any feedback would be gratefully received.
Meanwhile, Happy Christmas to all, and here's to a great and healthy new year for us all!