Hello I was just wondering if anyone has had a dose reduction from Ceritinib?
I have been taking it successfully for 2 and a half years on the full dose of 450mg but have always struggled with gastric side effects. My AOS nurse advised me to reduce the dose to 300mg as I seem to be struggling more and more.
Also is there anyone taking Lorlatinib as this is probably my next option if the reduced dose doesn’t work. I have read of some scary neurological side effects which is also influencing my decision about the dose reduction.
I’m scared that reduction will leave the door open for the cancer to return ( I also have brain mets that have been treated with SRS).
I’m not a member of the ALK positive group as I’m not in Facebook so if anyone else knows or can give me some advice I would appreciate it.
Many thanks x